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Author Re: Hello again folks
S.

2005-08-26, 8:55 am


"Sparks" <nomail@nomail.co.uk> wrote in message
news:dei8l6$f1l$1@newsg2.svr.pol.co.uk...
> Hi S
> Yes I did get up to 25% crude tar, as you say its made in one hospital
> somewhere in England.
> I believe that I was unusual to get to 25% without burning, although by
> 25%
> it was starting to burn a bit.


Stoke-on-Trent. This is interesting ; the pharm. at the hospital I was in
said that 10% was the max - I am sure my derm has taken this as gospel, I'll
speak to him......

> The short contact therapy was a bit of an enterprise by the nurses on the
> dermitology ward. They took patients in the evenings when the main work
> of
> the day was over. The idea being to take work off the doctors. The
> doctors
> would refer patients to the nurses and a staff nurse would basically run
> the
> treatment with occasional reference to the doctor. They had a pretty good
> success rate and it allowed lots of us to keep working.


Sounds very accomodating ; and you get the benefit of hospital quality
dressings.

>
> Most folk who were going to respond did so under 15% and within 6-12
> weeks.
> It may be that if you can get an enquiry with the hospital ward they run
> or
> could run something like that.


I got up to 5%, and I was applying it myself twice a day (often, on a 29-bed
ward of mostly respiratory patients, there were only 2 nurses, only 1 of
whom was qualified!). It made a visible difference over just a couple of
nights.

>
> Hydroxycarbamide is an old treatment is an old treatment and is less
> likely
> to be effective than MTX but is also less likely to cause problems. (Its
> also one of the cheapest drug treatments around I believe.) I figure that
> it's worth a try even if its less likely to work on the grounds that if it
> does work then its easier to live with and shows improvement within a
> month.
> 1.5g per day is the normal dose so I doubt that your derm would want to go
> any stronger. I assume that theres a problem if your derm is looking for
> a
> biologic.


According to 2 derms, *nothing* is as effective as MTX, it is far and away
the treatment of choice for managing long term chronic psoriasis - the pros
far outweigh the cons. It has also been around 50 years, and so is "as cheap
as chips". There is a problem as I *must* have a systemic agent (i.e.
bodywide) to help manage my P. - topicals alone will not do it. He also
mentioned Fumaric Acid, but went with Hydroxy, the dosage of which is
calculated by weight. (I THINK that the recommended dose is 10 - 25 mg per
kg. of body weight, and with my weight, I am at the lowest end of that
scale.). I was released from hospital on Tuesday afternoon, and I was by no
means clear, in fact, the P is creeping back.

My P was completely manageable prior to 1985. I went in to a dermatology
ward, and caught a staphylococcal infection. It sent the P over 100% of my
body, and I was awoken at 6:00 am for obs with a pulse rate of 150. Since
that time, my P, apart form the MTX years, is uncontrollable. A word of
warning..........



S.


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