Migraine support - Afterthought Re: Anyone with 24/7 migraine?? Need help.

Author

Afterthought Re: Anyone with 24/7 migraine?? Need help.

Sandy L

2005-08-25, 11:51 am

"Sandy L" <hlmssl@mindspring.com> wrote in message
news:lfkPe.1653$FW1.18@newsread3.news.atl.earthlink.net...
> "miklah" <mek918@hotmail.com> wrote in message
> news:1124914489.146480.237790@z14g2000cwz.googlegroups.com...
>
> That is atypical enough that special workup would seemwarranted. Careful
> examination of the back of the eyes, by a neurologist or ophthalmologist,
> is an easy way to start. MRI (both brain and skull/sinuses) and lumbar
> puncture both come to mind as possibly reasonable efforts. This is the
> sort of thing where I usually figure I am in over my head and try to find
> an appropriate specialist to see the patient, possibly ordering some tests
> so that they will be available when the patient gets to the specialist.
>
Arterial blood gasses and perhaps a test for carbon monoxide poisoning
(carboxy hemoglobin concentration) would also be reasonable. Do you have a
carbon monoxide monitor in you home?

miklah

2005-08-25, 11:51 am

I have had repeated MRIs and they show nothing. I've also seen a
neuroopthamologist and she said everything was normal.

I have fibromyalgia (I think). 4 years ago this started as unbearable
neck/back pain, which turned into the headache. I felt like I was
underwater - couldn't hear. It was awful. After months that went away
and I was left with just the back/neck pain. Then, about 6 months
later it turned into this headache (really, it's more of a face ache -
definitley TMJ, but much more than that).

I go to a chiropractor weekly and get massage. I'm doing a detox diet
now and they are going to try some herbal remedies -feverfew,etc.

I've also seen rheumatologists, physical therapists, etc.

I have to wonder why it went away 100% when I got pregnant.

I don't have a carbon monoxide monitor in my home, I don't think. But I
have lived in 2 places with these headaches so I can't imagine that is
the problem.

Sandy - I am new to this board. Are you a doctor?

Sandy L

2005-08-25, 11:51 am

"miklah" <mek918@hotmail.com> wrote in message
news:1124982203.268665.246760@o13g2000cwo.googlegroups.com...
>I have had repeated MRIs and they show nothing. I've also seen a
> neuroopthamologist and she said everything was normal.
>
> I have fibromyalgia (I think). 4 years ago this started as unbearable
> neck/back pain, which turned into the headache. I felt like I was
> underwater - couldn't hear. It was awful. After months that went away
> and I was left with just the back/neck pain. Then, about 6 months
> later it turned into this headache (really, it's more of a face ache -
> definitley TMJ, but much more than that).
>
> I go to a chiropractor weekly and get massage. I'm doing a detox diet
> now and they are going to try some herbal remedies -feverfew,etc.
>
> I've also seen rheumatologists, physical therapists, etc.
>
> I have to wonder why it went away 100% when I got pregnant.
>
> I don't have a carbon monoxide monitor in my home, I don't think. But I
> have lived in 2 places with these headaches so I can't imagine that is
> the problem.
>
> Sandy - I am new to this board. Are you a doctor?

Yes, not a neurologist or headache specialist, just one with an interest in
headaches. Try browsing at http://www.i-h-s.org, the International Headache
Society website. Go to Guidelines, then to Diagnostic criteria. You might
find something helpful to discuss with your doctors. Are you familiar with
the NTI-tss for bruxism/clenching/TMJ and headaches secondary to those
problems?

miklah

2005-08-25, 11:51 am

Yes, I also saw a neuromuscular dentist and had a $4000 splint made!
It didn't do a thing.

Sandy L

2005-08-25, 11:51 am

"miklah" <mek918@hotmail.com> wrote in message
news:1124983311.263053.33670@g47g2000cwa.googlegroups.com...
> Yes, I also saw a neuromuscular dentist and had a $4000 splint made!
> It didn't do a thing.
>

That's pricey! What does the splint look like? If it allows contact
between the upper and lower teeth in the back, it probably wouldn't work.