| sheila!! 2005-11-19, 5:56 pm |
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cllmd wrote:
> <thehallers@optusnet.com> wrote in message
> news:1132365043.738329.144210@o13g2000cwo.googlegroups.com...
>
> Start here, dear heart. Start here.
>
> The pain. I know moving messes up relationships you've had with doctors.
> Finding a good one where i've been living for the last 25 yrs took 18. ( I
> have what most would consider fairy tale pain relieft, and my head is
> screaming today too.)
>
> Most folks here find excellent neurologists. And that is job #2. First,
> find a kind, caring primary care physician. How can you do that? Knock on
> your neighbors' doors, introduce yourself and ask if they can suggest a good
> family doctor. That way, you've gotten some good recommendations and have
> met your neighbors. It's always good to ask a favor of someone early on (a
> really easy one!) because they feel they've helped you.
>
> Reading your post reminded me of the times when i was still trying to do
> things and had to cancel all of the time. I lost many friends, and the
> affection of many family members. I also became hated at my job because of
> the frequent absences and the medicated monster who came in my place when i
> could make it there. I, too, could not quit my job.
>
> But i ended up having to do so. We went thru bankruptcy in '99. And we're
> here now, on the other end of it. I'm on disability (after two years of
> chasing it) and we live in a duplex instead of having a home. We don't have
> kids because my head completely messed up that opportunity too. But i have
> many other blessings that are too numerous to count here....broadband width
> and such :-)
>
> Pain is a lonely place. But you've found a place where pain isn't a shunned
> inconvenience.
>
> The constant inner voice that tells you that you are worthless does almost
> as much damage...maybe more. You are right...you've got to get help with
> that, too. I went thru a year solid of counselling every week. I still
> have an appt. about once a month (the guy comes here.) And i went thru
> biofeedback and relaxation stuff. Those do help. They don't turn off my
> pain, but they can scale it back, lower it some, and definately make the
> pain less urgent. Dunno about you, but for a long time, the pain wouldn't
> let me do anything else unless i stopped it somehow. I use music therapy
> mostly (cuz i'm a musician) and it helps bunches with letting me live my
> life WITH the pain.
>
> But let's not get that far into it now. We need to find you a dr who won't
> shrug at you, once you've tried his three magic trix and none have helped.
> Once you've got that doctor and a decent neuro, then maybe some help with
> the general outlook ofyour life might help.
>
> I hope you hang around. I'd like to see you again, personally. We can walk
> through pain journey, maybe not pain free, but at least trying many
> different options to treat it, and definately living a much better, fuller
> life.
>
> Deep peace,
> Lavon
Thanks for all of your replies. You do sound like a nice group. And
honest I have noticed too - which is very good.
I am seeing a neurologist, but I have to wait until Jan to see if me
reducing my stress (with work worries and my mother coming in 2 weeks
for Christmas!) can improve it. Then he will reveiw me, but is
reluctant to give me drugs as they work on the pain and not the
neurological effects. Then I saw my doc for a sick note the other day
and he checked it was migraine and immediately gave me imigran to try,
and then he has others he will try if that does not work. Sadly the
imigran gave me a choking feeling which was listed in the dangerous
side effects, even though after an hour I felt fairly normal. My
concern is that I need someone in between the two. I am getting more
frustrated as this goes on. I am concerned that if I have basilar
migraine the GP will not know if the drugs are contraindicated ( having
already been prescribed two drugs which were definately the wrong thing
to give me for something else - not good at all), but the neuro is
reluctant to give me anything. I thought they were getting better
until this one which has lasted 7 days today. This is rediculous. I
have found in the past that if you approach a doctor with any kind of
knowledge, or question them, then they get very put out and the
relationship is soured instantly. Then you need to act dumb. We also
live in Adelaide, which is a relatively small city, so it would not
take long to get through the specialists.
I admit, I am a bit low at the moment, and apologise if I sound very
negative. I try so hard not to be with work and kids and hubby.
Sometimes I just want to say this is S**t!
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