Migraine support - I am new and feel very alone. I need some tea and sympathy.

Author

I am new and feel very alone. I need some tea and sympathy.

thehallers@optusnet.com

2005-11-19, 12:59 am

I am 33, and over the past six months I have discovered that I am
suffering from neurological migraine (possibly basilar from my own
reading). I saw two neurologists, a endocrinologist, ent specialists
and have been in emergency 3 times. I began with what appears to have
been an infection in the thyroid, and have ended up with migraines
every 2 weeks lasting from 2 days to 7+.

My head used to hurt really badly. In fact one time, it was only
morphine that helped. Now I just have a dull ache at the back of my
head and what feels like a massive weight on the top of my head. It is
the rest of the stuff that is driving my crazy. My symptoms are never
the same, they are constantly changing. I have tingling in my left
hand and leg and my speech slurs and my legs give way and my face goes
numb. I cannot think at all, cant read etc. I can become aggressive and
say things I would not normally say (ie to managers!) And the really
weird thing is that my left vocal chord parylises too, so I sound like
Darth Vader. I know because they have put a camera down my throat
several times. My work is affected because I cannot type. Everything
gets really loud, just like somone slowly turning up the volume. This
gets so bad that when my kids are loud I can loose balance. Sometimes
are worse than others. I keep thinking it is getting better and then
it regresses again. Saying that, it is not as bad as it was in the
begining when I was basically like this every day - just a question of
severity.

My current neurologist says that he thinks it will get better over
time. I get the impression that he would rather I did not work for a
bit, but that is impossible. I need to reduce my stress levels and
stop thinking that I am useless etc and start being positive. If this
does not work, he will review my case. I am just starting to wonder
how long this time will take. I have been told by a previous
neurologist that I did not even have migraines, and another said that I
should consider myself lucky that I have had the priviledge of having
and MRI scan and know there is nothing nasty there! (Done during the
migraine attatck that took morphine to make me sleep - wonder why!)

My current neurologist thinks that I have always had migraine and it is
changing - which I agree with. I have had awful headaches for several
years (since my first child), but they have been occasional. Recently
I had ones that were just lights in my eyes for several months, and
then this started to happen when I was being incorrectly treated for my
thyroid.

So. The migraines were already there. Did the incorrect thyroid
treatment make these migraines, or was I going to have them anyway? I
am also being successfully treated for hypertension - which was
pre-existing also. And I think that I am prone to low blood sugar
levels, which I saw mentioned on this site before. I have always had
this, but a blood test shows that I am not diabetic, but my mother is
with type two.

To be honest. I cannot get rid of the symptoms overnight, I know that.
But I feel so lonely. We moved to Australia 2 years ago. The first
bad headaches started when I started my first job and lasted 3 days at
a time. They were not that regular then. We got to know people where
we rented and then moved again to buy a house. We have not really got
to know anyone here. I feel so isolated. We have no family or friends
we can rely on for babysitting or just support. If this had not
happened, we would be out with people and making friendships. As it
is, I keep missing things that we have organised. Today I am supposed
to helping in the kitchen at surf life saving club, but my head is
going weird again, so I am staying here and everyone else is going to
play in the sea on such a lovely sunny day.

I am tired, sad and lonely. I dont even know if this is an Aussie site
or not. I have to start somewhere.

'did

2005-11-19, 12:59 am

On 18 Nov 2005 17:50:43 -0800, thehallers@optusnet.com wrote:
(snip)
>
>So. The migraines were already there. Did the incorrect thyroid
>treatment make these migraines, or was I going to have them anyway? I
>am also being successfully treated for hypertension - which was
>pre-existing also. And I think that I am prone to low blood sugar
>levels, which I saw mentioned on this site before. I have always had
>this, but a blood test shows that I am not diabetic, but my mother is
>with type two.
>

Some people do have reduced migraines when thyroid is treated
properly. You may find that once your thyroid is under control,
migraines may improve. Hypertension can also contribute to headaches
as can low blood sugar.

(snip)
>I am tired, sad and lonely. I dont even know if this is an Aussie site
>or not. I have to start somewhere.

No, this is not an Aussie site. It is an international newsgroup. Many
here are from the U.S. but also quite a number from Canada, the UK,
and other parts of the world. There are a couple of people from
Australia who have been known to pop in.

The thyroid problems can also make you feel tired. Being in pain can
does not help.

Email if you need a listening ear or post here. There are lots of
people who understand.

Gentle hugs,
Kadee

Sandy L

2005-11-19, 12:59 am

cllmd

2005-11-19, 12:54 pm

<thehallers@optusnet.com> wrote in message
news:1132365043.738329.144210@o13g2000cwo.googlegroups.com...
>I am 33, and over the past six months I have discovered that I am
> suffering from neurological migraine (possibly basilar from my own
> reading). I saw two neurologists, a endocrinologist, ent specialists
> and have been in emergency 3 times. I began with what appears to have
> been an infection in the thyroid, and have ended up with migraines
> every 2 weeks lasting from 2 days to 7+.
>
> My head used to hurt really badly. In fact one time, it was only
> morphine that helped. Now I just have a dull ache at the back of my
> head and what feels like a massive weight on the top of my head. It is
> the rest of the stuff that is driving my crazy. My symptoms are never
> the same, they are constantly changing. I have tingling in my left
> hand and leg and my speech slurs and my legs give way and my face goes
> numb. I cannot think at all, cant read etc. I can become aggressive and
> say things I would not normally say (ie to managers!) And the really
> weird thing is that my left vocal chord parylises too, so I sound like
> Darth Vader. I know because they have put a camera down my throat
> several times. My work is affected because I cannot type. Everything
> gets really loud, just like somone slowly turning up the volume. This
> gets so bad that when my kids are loud I can loose balance. Sometimes
> are worse than others. I keep thinking it is getting better and then
> it regresses again. Saying that, it is not as bad as it was in the
> begining when I was basically like this every day - just a question of
> severity.
>
> My current neurologist says that he thinks it will get better over
> time. I get the impression that he would rather I did not work for a
> bit, but that is impossible. I need to reduce my stress levels and
> stop thinking that I am useless etc and start being positive. If this
> does not work, he will review my case. I am just starting to wonder
> how long this time will take. I have been told by a previous
> neurologist that I did not even have migraines, and another said that I
> should consider myself lucky that I have had the priviledge of having
> and MRI scan and know there is nothing nasty there! (Done during the
> migraine attatck that took morphine to make me sleep - wonder why!)
>
> My current neurologist thinks that I have always had migraine and it is
> changing - which I agree with. I have had awful headaches for several
> years (since my first child), but they have been occasional. Recently
> I had ones that were just lights in my eyes for several months, and
> then this started to happen when I was being incorrectly treated for my
> thyroid.
>
> So. The migraines were already there. Did the incorrect thyroid
> treatment make these migraines, or was I going to have them anyway? I
> am also being successfully treated for hypertension - which was
> pre-existing also. And I think that I am prone to low blood sugar
> levels, which I saw mentioned on this site before. I have always had
> this, but a blood test shows that I am not diabetic, but my mother is
> with type two.
>
> To be honest. I cannot get rid of the symptoms overnight, I know that.
> But I feel so lonely. We moved to Australia 2 years ago. The first
> bad headaches started when I started my first job and lasted 3 days at
> a time. They were not that regular then. We got to know people where
> we rented and then moved again to buy a house. We have not really got
> to know anyone here. I feel so isolated. We have no family or friends
> we can rely on for babysitting or just support. If this had not
> happened, we would be out with people and making friendships. As it
> is, I keep missing things that we have organised. Today I am supposed
> to helping in the kitchen at surf life saving club, but my head is
> going weird again, so I am staying here and everyone else is going to
> play in the sea on such a lovely sunny day.
>
> I am tired, sad and lonely. I dont even know if this is an Aussie site
> or not. I have to start somewhere.
>

Start here, dear heart. Start here.

The pain. I know moving messes up relationships you've had with doctors.
Finding a good one where i've been living for the last 25 yrs took 18. ( I
have what most would consider fairy tale pain relieft, and my head is
screaming today too.)

Most folks here find excellent neurologists. And that is job #2. First,
find a kind, caring primary care physician. How can you do that? Knock on
your neighbors' doors, introduce yourself and ask if they can suggest a good
family doctor. That way, you've gotten some good recommendations and have
met your neighbors. It's always good to ask a favor of someone early on (a
really easy one!) because they feel they've helped you.

Reading your post reminded me of the times when i was still trying to do
things and had to cancel all of the time. I lost many friends, and the
affection of many family members. I also became hated at my job because of
the frequent absences and the medicated monster who came in my place when i
could make it there. I, too, could not quit my job.

But i ended up having to do so. We went thru bankruptcy in '99. And we're
here now, on the other end of it. I'm on disability (after two years of
chasing it) and we live in a duplex instead of having a home. We don't have
kids because my head completely messed up that opportunity too. But i have
many other blessings that are too numerous to count here....broadband width
and such :-)

Pain is a lonely place. But you've found a place where pain isn't a shunned
inconvenience.

The constant inner voice that tells you that you are worthless does almost
as much damage...maybe more. You are right...you've got to get help with
that, too. I went thru a year solid of counselling every week. I still
have an appt. about once a month (the guy comes here.) And i went thru
biofeedback and relaxation stuff. Those do help. They don't turn off my
pain, but they can scale it back, lower it some, and definately make the
pain less urgent. Dunno about you, but for a long time, the pain wouldn't
let me do anything else unless i stopped it somehow. I use music therapy
mostly (cuz i'm a musician) and it helps bunches with letting me live my
life WITH the pain.

But let's not get that far into it now. We need to find you a dr who won't
shrug at you, once you've tried his three magic trix and none have helped.
Once you've got that doctor and a decent neuro, then maybe some help with
the general outlook ofyour life might help.

I hope you hang around. I'd like to see you again, personally. We can walk
through pain journey, maybe not pain free, but at least trying many
different options to treat it, and definately living a much better, fuller
life.

Deep peace,
Lavon

~Sage

2005-11-20, 12:59 am

Well, you're not alone here! Welcome!

Hugs,

~Sage

<thehallers@optusnet.com> wrote in message
news:1132365043.738329.144210@o13g2000cwo.googlegroups.com...
> I am 33, and over the past six months I have discovered that I am
> suffering from neurological migraine (possibly basilar from my own
> reading). I saw two neurologists, a endocrinologist, ent specialists
> and have been in emergency 3 times. I began with what appears to have
> been an infection in the thyroid, and have ended up with migraines
> every 2 weeks lasting from 2 days to 7+.
>
> My head used to hurt really badly. In fact one time, it was only
> morphine that helped. Now I just have a dull ache at the back of my
> head and what feels like a massive weight on the top of my head. It is
> the rest of the stuff that is driving my crazy. My symptoms are never
> the same, they are constantly changing. I have tingling in my left
> hand and leg and my speech slurs and my legs give way and my face goes
> numb. I cannot think at all, cant read etc. I can become aggressive and
> say things I would not normally say (ie to managers!) And the really
> weird thing is that my left vocal chord parylises too, so I sound like
> Darth Vader. I know because they have put a camera down my throat
> several times. My work is affected because I cannot type. Everything
> gets really loud, just like somone slowly turning up the volume. This
> gets so bad that when my kids are loud I can loose balance. Sometimes
> are worse than others. I keep thinking it is getting better and then
> it regresses again. Saying that, it is not as bad as it was in the
> begining when I was basically like this every day - just a question of
> severity.
>
> My current neurologist says that he thinks it will get better over
> time. I get the impression that he would rather I did not work for a
> bit, but that is impossible. I need to reduce my stress levels and
> stop thinking that I am useless etc and start being positive. If this
> does not work, he will review my case. I am just starting to wonder
> how long this time will take. I have been told by a previous
> neurologist that I did not even have migraines, and another said that I
> should consider myself lucky that I have had the priviledge of having
> and MRI scan and know there is nothing nasty there! (Done during the
> migraine attatck that took morphine to make me sleep - wonder why!)
>
> My current neurologist thinks that I have always had migraine and it is
> changing - which I agree with. I have had awful headaches for several
> years (since my first child), but they have been occasional. Recently
> I had ones that were just lights in my eyes for several months, and
> then this started to happen when I was being incorrectly treated for my
> thyroid.
>
> So. The migraines were already there. Did the incorrect thyroid
> treatment make these migraines, or was I going to have them anyway? I
> am also being successfully treated for hypertension - which was
> pre-existing also. And I think that I am prone to low blood sugar
> levels, which I saw mentioned on this site before. I have always had
> this, but a blood test shows that I am not diabetic, but my mother is
> with type two.
>
> To be honest. I cannot get rid of the symptoms overnight, I know that.
> But I feel so lonely. We moved to Australia 2 years ago. The first
> bad headaches started when I started my first job and lasted 3 days at
> a time. They were not that regular then. We got to know people where
> we rented and then moved again to buy a house. We have not really got
> to know anyone here. I feel so isolated. We have no family or friends
> we can rely on for babysitting or just support. If this had not
> happened, we would be out with people and making friendships. As it
> is, I keep missing things that we have organised. Today I am supposed
> to helping in the kitchen at surf life saving club, but my head is
> going weird again, so I am staying here and everyone else is going to
> play in the sea on such a lovely sunny day.
>
> I am tired, sad and lonely. I dont even know if this is an Aussie site
> or not. I have to start somewhere.
>

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mkc

2005-11-20, 10:57 am

yes, there are some very knowledgeable folks here, with lots of good input
and advice, and then there are those like me who can at least put the kettle
on to boil for the peppermint tea and a gentle hug

mk

"~Sage" <sagelechat@my-deja.com> wrote in message
news:1132465952_12875@spool6-east.superfeed.net...
> Well, you're not alone here! Welcome!
>
> Hugs,
>
> ~Sage
>

Liz Spindola

2005-11-22, 5:56 pm

Hi and welcome... I'm late coming in on this one. You've gotten lots of
great replies with which I agree wholeheartedly!! Oh... and just yelling
Sh** is one of the symptoms of migraine.......

Liz

<thehallers@optusnet.com> wrote in message
news:1132365043.738329.144210@o13g2000cwo.googlegroups.com...
>I am 33, and over the past six months I have discovered that I am
> suffering from neurological migraine (possibly basilar from my own
> reading). I saw two neurologists, a endocrinologist, ent specialists
> and have been in emergency 3 times. I began with what appears to have
> been an infection in the thyroid, and have ended up with migraines
> every 2 weeks lasting from 2 days to 7+.
>
> My head used to hurt really badly. In fact one time, it was only
> morphine that helped. Now I just have a dull ache at the back of my
> head and what feels like a massive weight on the top of my head. It is
> the rest of the stuff that is driving my crazy. My symptoms are never
> the same, they are constantly changing. I have tingling in my left
> hand and leg and my speech slurs and my legs give way and my face goes
> numb. I cannot think at all, cant read etc. I can become aggressive and
> say things I would not normally say (ie to managers!) And the really
> weird thing is that my left vocal chord parylises too, so I sound like
> Darth Vader. I know because they have put a camera down my throat
> several times. My work is affected because I cannot type. Everything
> gets really loud, just like somone slowly turning up the volume. This
> gets so bad that when my kids are loud I can loose balance. Sometimes
> are worse than others. I keep thinking it is getting better and then
> it regresses again. Saying that, it is not as bad as it was in the
> begining when I was basically like this every day - just a question of
> severity.
>
> My current neurologist says that he thinks it will get better over
> time. I get the impression that he would rather I did not work for a
> bit, but that is impossible. I need to reduce my stress levels and
> stop thinking that I am useless etc and start being positive. If this
> does not work, he will review my case. I am just starting to wonder
> how long this time will take. I have been told by a previous
> neurologist that I did not even have migraines, and another said that I
> should consider myself lucky that I have had the priviledge of having
> and MRI scan and know there is nothing nasty there! (Done during the
> migraine attatck that took morphine to make me sleep - wonder why!)
>
> My current neurologist thinks that I have always had migraine and it is
> changing - which I agree with. I have had awful headaches for several
> years (since my first child), but they have been occasional. Recently
> I had ones that were just lights in my eyes for several months, and
> then this started to happen when I was being incorrectly treated for my
> thyroid.
>
> So. The migraines were already there. Did the incorrect thyroid
> treatment make these migraines, or was I going to have them anyway? I
> am also being successfully treated for hypertension - which was
> pre-existing also. And I think that I am prone to low blood sugar
> levels, which I saw mentioned on this site before. I have always had
> this, but a blood test shows that I am not diabetic, but my mother is
> with type two.
>
> To be honest. I cannot get rid of the symptoms overnight, I know that.
> But I feel so lonely. We moved to Australia 2 years ago. The first
> bad headaches started when I started my first job and lasted 3 days at
> a time. They were not that regular then. We got to know people where
> we rented and then moved again to buy a house. We have not really got
> to know anyone here. I feel so isolated. We have no family or friends
> we can rely on for babysitting or just support. If this had not
> happened, we would be out with people and making friendships. As it
> is, I keep missing things that we have organised. Today I am supposed
> to helping in the kitchen at surf life saving club, but my head is
> going weird again, so I am staying here and everyone else is going to
> play in the sea on such a lovely sunny day.
>
> I am tired, sad and lonely. I dont even know if this is an Aussie site
> or not. I have to start somewhere.
>