Tourette support

Author

Uh Huh

Naomi

2005-01-16, 11:07 am

Hi Everyone:

I've noticed something with Kidlet, and wondered if anyone else has noticed
this with TS (+). When he starts talking about something, every third word
is "uh huh" or a throat clearing. He'll keep at this until he suddenly gets
angry, then yells something like "Leave me alone". He'll be quiet for 5 or
10 minutes then start his story again without any Uh huh's or throat
clearing.

I know I've read something about vocal tics, but that was many years ago in
"Teaching the Tiger". The resources I have that are more up to date again
mention vocal tics, but nothing about this kind of thing.

Any ideas?

Naomi

2005-01-16, 7:08 pm

"Naomi" <tsrules@gobot.com> wrote in message
news:t5xGd.102290$dv1.99601@edtnps89...
> Hi Everyone:
>
> I've noticed something with Kidlet, and wondered if anyone else has
noticed
> this with TS (+). When he starts talking about something, every
third word
> is "uh huh" or a throat clearing. He'll keep at this until he
suddenly gets
> angry, then yells something like "Leave me alone". He'll be quiet
for 5 or
> 10 minutes then start his story again without any Uh huh's or throat
> clearing.
>
> I know I've read something about vocal tics, but that was many years
ago in
> "Teaching the Tiger". The resources I have that are more up to date
again
> mention vocal tics, but nothing about this kind of thing.
>
> Any ideas?
>
> Naomi
>

Naomi, who is he yelling "Leave me alone" to? Is he yelling back at
his TS? Is the Uh-huh a tic-like sounds, or a response-like sound? I'm
sure it's most likely NOT that he is responding mentally to anyone,
but I would explore it with him just to be sure.
Perhaps the angry out-burst drains him enough, and the quiet 5 or 10
minutes allows him to settle down or slow his system down enough (in a
bio-feedback sort of way) so that he may then continue without the
tics. Would encouraging him gently to breathe help any? Many
kids/adults with TS will get excited when they speak, especially when
trying to tell a story or anecdote, and they will literally not stop
to breathe properly! (hey, many people do this, TS or not!). I've
found with myself and the clients I've worked with, that helping
people remember to slow down and breathe properly can indeed help
minimize ticcing, especially the verbal grunts, throat-clearings, etc.
By relaxing the diaphragm, words can flow more smoothly, and the
breathing does help the nervous system relax, which I truly believe is
a huge key to reducing tics, both temporarily in the short-term and
over longer periods as well, by slowing the sympathetic nervous
system.....

Anyway, whatever this is with Kidlet, it will probably pass...assuring
him "It's OK, take your time" etc might help him.....
I know how hard it must be for you to see him struggle like this....

Jo
>

Joanne

2005-01-16, 7:08 pm

Sandy L

2005-01-16, 10:07 pm

"Naomi" <tsrules@gobot.com> wrote in message
news:t5xGd.102290$dv1.99601@edtnps89...
> Hi Everyone:
>
> I've noticed something with Kidlet, and wondered if anyone else has
> noticed
> this with TS (+). When he starts talking about something, every third
> word
> is "uh huh" or a throat clearing. He'll keep at this until he suddenly
> gets
> angry, then yells something like "Leave me alone". He'll be quiet for 5
> or
> 10 minutes then start his story again without any Uh huh's or throat
> clearing.
>
> I know I've read something about vocal tics, but that was many years ago
> in
> "Teaching the Tiger". The resources I have that are more up to date again
> mention vocal tics, but nothing about this kind of thing.
>
> Any ideas?
>
> Naomi

Hmmm, Many years ago, we had a skinny young assistant prof lecturing in a
college biology class who was telling us some really fascinating stuff about
DNA and how the bases paired off in a spiral, encoding proteins etc. The
acoustics in the hall were pretty bad, he talked with his head down, and
about every fifthe word was "Uh." I approached the course director and
toldhim about this and suggested they consider getting a grad student to
read his lectures or perhaps enroll him in Toastmansters. The course
director listened courteusly, thanked me, but said he thought they would
keep Dr. Watson in the lineup. About two years later, he shared a Nobel
prize with Dr. Crick for the work he was describing. I told that story to
someone else a few years back and was told he probably still spoke that way.
I don't think that was TS, I think he had just never learned public
speaking, but I wonder. . . .

2005-01-16, 10:07 pm

Crikey, Sandy, how old are you?!!! My memory must be bad, I thought
Crick and Watson were from the 30's or 40's...50's??

But seriously, I know some of the smartest people in the world are NOT
the best orators!

jo

"Sandy L" <hlmssl@mindspring.com> wrote in message
news:3sFGd.1084$Rs.483@newsread3.news.atl.earthlink.net...
> "Naomi" <tsrules@gobot.com> wrote in message
> news:t5xGd.102290$dv1.99601@edtnps89...
has[vbcol=seagreen]
third[vbcol=seagreen]
suddenly[vbcol=seagreen]
for 5[vbcol=seagreen]
throat[vbcol=seagreen]
years ago[vbcol=seagreen]
date again[vbcol=seagreen]
>
> Hmmm, Many years ago, we had a skinny young assistant prof
lecturing in a
> college biology class who was telling us some really fascinating
stuff about
> DNA and how the bases paired off in a spiral, encoding proteins etc.
The
> acoustics in the hall were pretty bad, he talked with his head down,
and
> about every fifthe word was "Uh." I approached the course director
and
> toldhim about this and suggested they consider getting a grad
student to
> read his lectures or perhaps enroll him in Toastmansters. The
course
> director listened courteusly, thanked me, but said he thought they
would
> keep Dr. Watson in the lineup. About two years later, he shared a
Nobel
> prize with Dr. Crick for the work he was describing. I told that
story to
> someone else a few years back and was told he probably still spoke
that way.
> I don't think that was TS, I think he had just never learned public
> speaking, but I wonder. . . .
>
>

Randall Bart

2005-01-17, 4:06 am

'Twas Sun, 16 Jan 2005 17:01:13 GMT when all alt.support.tourette stood in
awe as "Naomi" <tsrules@gobot.com> uttered:

>When he starts talking about something, every third word
>is "uh huh" or a throat clearing. He'll keep at this until he suddenly gets
>angry, then yells something like "Leave me alone". He'll be quiet for 5 or
>10 minutes then start his story again without any Uh huh's or throat
>clearing.

This sounds familiar to me, though I can't say it was ever as intense as
what you describe. I would probably shut up and never tell the story.
--
RB |\ © Randall Bart
aa |/ admin@RandallBart.spam.com Barticus@att.spam.net
nr |\ Please reply without spam I LOVE YOU 1-917-715-0831
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l |/ MS^7=6/28/107 http://yg.cotut.com mailto:s@cotut.com

Randall Bart

2005-01-17, 4:06 am

'Twas Mon, 17 Jan 2005 02:31:27 GMT when all alt.support.tourette stood in
awe as "Sandy L" <hlmssl@mindspring.com> uttered:

>I approached the course director and
>toldhim about this and suggested they consider getting a grad student to
>read his lectures or perhaps enroll him in Toastmansters. The course
>director listened courteusly, thanked me, but said he thought they would
>keep Dr. Watson in the lineup. About two years later, he shared a Nobel
>prize with Dr. Crick for the work he was describing.

Watson had OCD, including some odd habits, but I have never heard that he
had Tourette. Unless you say that calling Rosalind Franklin "Rosie" was
an example of coprolalia.

--
RB |\ © Randall Bart
aa |/ admin@RandallBart.spam.com Barticus@att.spam.net
nr |\ Please reply without spam I LOVE YOU 1-917-715-0831
dt ||\ Do the Math: http://calculator.brainthru.com
a |/ Our New Attorney General: http://alberto.brainthru.com
l |\ DOT-HS-808-065 The Church Of The Unauthorized Truth:
l |/ MS^7=6/28/107 http://yg.cotut.com mailto:s@cotut.com

Randall Bart

2005-01-17, 4:06 am

'Twas Sun, 16 Jan 2005 22:14:29 -0500 when all alt.support.tourette stood
in awe as "Jo" <jocohen@comcast.net> uttered:

>But seriously, I know some of the smartest people in the world are NOT
>the best orators!

To be a good orator you have to think at talking speed. Most of us think
far faster.

--
RB |\ © Randall Bart
aa |/ admin@RandallBart.spam.com Barticus@att.spam.net
nr |\ Please reply without spam I LOVE YOU 1-917-715-0831
dt ||\ Do the Math: http://calculator.brainthru.com
a |/ Our New Attorney General: http://alberto.brainthru.com
l |\ DOT-HS-808-065 The Church Of The Unauthorized Truth:
l |/ MS^7=6/28/107 http://yg.cotut.com mailto:s@cotut.com

Sandy L

2005-01-17, 7:07 am

"Jo" <jocohen@comcast.net> wrote in message
news:yLednb2bu6VcsHbcRVn-jA@comcast.com...
>
>
> Crikey, Sandy, how old are you?!!! My memory must be bad, I thought
> Crick and Watson were from the 30's or 40's...50's??
>
> But seriously, I know some of the smartest people in the world are NOT
> the best orators!
>
> jo

That encounter would have been about 1960. I turned 65 last week, making me
officially an old fart. (And somebody else has the screen name Flatus
Ohlfahrt, Darn!)

> "Sandy L" <hlmssl@mindspring.com> wrote in message
> news:3sFGd.1084$Rs.483@newsread3.news.atl.earthlink.net...
> has
> third
> suddenly
> for 5
> throat
> years ago
> date again
> lecturing in a
> stuff about
> The
> and
> and
> student to
> course
> would
> Nobel
> story to
> that way.
>
>

Naomi

2005-01-17, 11:09 am

"Jo" <jocohen@comcast.net> wrote in message
news:dYCdnQxbv_rOOXfcRVn-rw@comcast.com...
>
> "Naomi" <tsrules@gobot.com> wrote in message
> news:t5xGd.102290$dv1.99601@edtnps89...
> noticed
> third word
> suddenly gets
> for 5 or
> ago in
> again
>
> Naomi, who is he yelling "Leave me alone" to? Is he yelling back at
> his TS? Is the Uh-huh a tic-like sounds, or a response-like sound? I'm
> sure it's most likely NOT that he is responding mentally to anyone,
> but I would explore it with him just to be sure.
> Perhaps the angry out-burst drains him enough, and the quiet 5 or 10
> minutes allows him to settle down or slow his system down enough (in a
> bio-feedback sort of way) so that he may then continue without the
> tics. Would encouraging him gently to breathe help any? Many
> kids/adults with TS will get excited when they speak, especially when
> trying to tell a story or anecdote, and they will literally not stop
> to breathe properly! (hey, many people do this, TS or not!). I've
> found with myself and the clients I've worked with, that helping
> people remember to slow down and breathe properly can indeed help
> minimize ticcing, especially the verbal grunts, throat-clearings, etc.
> By relaxing the diaphragm, words can flow more smoothly, and the
> breathing does help the nervous system relax, which I truly believe is
> a huge key to reducing tics, both temporarily in the short-term and
> over longer periods as well, by slowing the sympathetic nervous
> system.....
>
> Anyway, whatever this is with Kidlet, it will probably pass...assuring
> him "It's OK, take your time" etc might help him.....
> I know how hard it must be for you to see him struggle like this....
>
> Jo
>

I have to admit I did think of when Kidlet was younger (4 - 8 years old)
when he had "monsters" coming through the ceiling and would build "monster
traps" on the farm (on pathways, etc). He seems to be struggling to tell
his story without interference. I have mentioned to him he can slow down,
I'm not going anywhere and can wait for his story but it doesn't seem to
take too much before he gets mad. I know there's some really smart people
who have speech issues, for example, I have a cousin who is a genius and
speaks like he's on perpetual pot even though he's never touched the stuff
*LOL*.

We'll try the breathing and see what happens.

Naomi

Naomi

2005-01-17, 11:09 am

Does he stop on his own or have you taught him to do that?

"Joanne" <j-s.b@removesympatico.ca> wrote in message
news:gUCGd.3564$K03.154943@news20.bellglobal.com...
>
> "Naomi" <tsrules@gobot.com> wrote in message
> news:t5xGd.102290$dv1.99601@edtnps89...
again[vbcol=seagreen]
> My son does this a lot. But usually it's a swear word, he also stutters a
> lot when telling me a story. He will yell when becoming frustrated with
his
> story not being told the right way.The he stops, it seems like he clears
his
> mind and starts again without the swear words.
> --
> Joanne
> mom to Mat the Amazing!
>
>

Naomi

2005-01-17, 11:09 am

Unfortunately society was way more accepting then. What Kidlet is doing now
can get him suspended from school *sigh*

"Sandy L" <hlmssl@mindspring.com> wrote in message
news:3sFGd.1084$Rs.483@newsread3.news.atl.earthlink.net...
> "Naomi" <tsrules@gobot.com> wrote in message
> news:t5xGd.102290$dv1.99601@edtnps89...
again[vbcol=seagreen]
>
> Hmmm, Many years ago, we had a skinny young assistant prof lecturing in a
> college biology class who was telling us some really fascinating stuff
about
> DNA and how the bases paired off in a spiral, encoding proteins etc. The
> acoustics in the hall were pretty bad, he talked with his head down, and
> about every fifthe word was "Uh." I approached the course director and
> toldhim about this and suggested they consider getting a grad student to
> read his lectures or perhaps enroll him in Toastmansters. The course
> director listened courteusly, thanked me, but said he thought they would
> keep Dr. Watson in the lineup. About two years later, he shared a Nobel
> prize with Dr. Crick for the work he was describing. I told that story to
> someone else a few years back and was told he probably still spoke that
way.
> I don't think that was TS, I think he had just never learned public
> speaking, but I wonder. . . .
>
>

Naomi

2005-01-17, 11:09 am

I probably would do the same, but Kidlet has such good stories to tell, we
love to hear them. I wonder if the elastic band thing would work in
helping?

"Randall Bart" <Barticus@att.spam.net> wrote in message
news:0rhmu0lv2pran7qlq9neha51hug7hiu8v0@4ax.com...
> 'Twas Sun, 16 Jan 2005 17:01:13 GMT when all alt.support.tourette stood in
> awe as "Naomi" <tsrules@gobot.com> uttered:
>
gets[vbcol=seagreen]
or[vbcol=seagreen]
>
> This sounds familiar to me, though I can't say it was ever as intense as
> what you describe. I would probably shut up and never tell the story.
> --
> RB |\ © Randall Bart
> aa |/ admin@RandallBart.spam.com Barticus@att.spam.net
> nr |\ Please reply without spam I LOVE YOU 1-917-715-0831
> dt ||\ Do the Math: http://calculator.brainthru.com
> a |/ Our New Attorney General: http://alberto.brainthru.com
> l |\ DOT-HS-808-065 The Church Of The Unauthorized Truth:
> l |/ MS^7=6/28/107 http://yg.cotut.com mailto:s@cotut.com

Jodi

2005-01-17, 11:09 am

"Naomi" <tsrules@gobot.com> wrote in message
news:wwPGd.106395$dv1.11895@edtnps89...
When he starts talking about something, every[vbcol=seagreen]

My son did something like this along with a "gunk" sounding swallow. I am
sorry kidlet is so frustrated with it. Maybe you can reassure him that it
is a tic and tics are everchanging, so hopefully it won't hang around for
long.

2005-01-17, 11:09 am

HAPPY BIRTHDAY SANDY!!

Jo

"Sandy L" <hlmssl@mindspring.com> wrote in message
news:ohMGd.1324$Rs.593@newsread3.news.atl.earthlink.net...
> "Jo" <jocohen@comcast.net> wrote in message
> news:yLednb2bu6VcsHbcRVn-jA@comcast.com...
thought[vbcol=seagreen]
NOT[vbcol=seagreen]
>
> That encounter would have been about 1960. I turned 65 last week,
making me
> officially an old fart. (And somebody else has the screen name
Flatus
> Ohlfahrt, Darn!)
>
every[vbcol=seagreen]
quiet[vbcol=seagreen]
etc.[vbcol=seagreen]
down,[vbcol=seagreen]
director[vbcol=seagreen]
they[vbcol=seagreen]
a[vbcol=seagreen]
spoke[vbcol=seagreen]
public[vbcol=seagreen]
>
>

Joanne

2005-01-17, 7:08 pm

"Naomi" <tsrules@gobot.com> wrote in message
news:7xPGd.106396$dv1.41188@edtnps89...
> Does he stop on his own or have you taught him to do that?
>

He does it all on his own. When he was younger, I would tell him to slow
down and think. That didn't work, he would just get mad at me. From then on,
I just let him get through it on his own.
--
Joanne
mom to Mat the Amazing!

Naomi

2005-01-18, 11:08 am

Boy, do I feel for you Bob. When Kidlet was little (5 years old or so), he
would be "removed" for flailing. I know it was for the safety of the other
children, but I often wonder how much damage was done to his self esteem.

I only hope some day he can articulate like you.

Naomi

"What about Bob" <ka1yon@charter.net> wrote in message
news:FEQGd.13415$9O3.10962@fe06.lga...
> At age 28 I began talking then in the middle of a conversation I was say
> "I'm getting out" followed by a series of complex motor tics where my
right
> arm would swing out. This whole thing meant absolutly nothing but my ex
wife
> took it as I wanted out of the marrige,,,,,,,in retrospect, maybe I did
cuz
> I could sense her infidelities?
> I do not know but it does make sense to me now............When I tried to
> explain this to a friend in the Mass TSA, he labled me a wife beater when
I
> have NEVER hit a female with any malice............my wife now knows this
> and is very understanding when I SIB and she tries to stop and sometime
gets
> hit( its hard to duck my failing arms) but she also know that pain I am in
> during a SIB session both physcally and emotionally and is always by my
side
> after ...........this is trye love and why I not only am divorce from my
ex
> wife but why I divorced my entire fomrer family, in court , so it is
legal!
> Naomi I have TS ++++++
> "Naomi" <tsrules@gobot.com> wrote in message
> news:t5xGd.102290$dv1.99601@edtnps89...
again[vbcol=seagreen]
>
>

Randall Bart

2005-01-19, 7:07 am

Sandy L

2005-01-19, 11:08 am

Naomi

2005-01-27, 7:37 am

Are you happy now? That's all that matters you know, cause everything we
experience helps create who we are today. So I hope you like you *S*.

Naomi

"What about Bob" <ka1yon@charter.net> wrote in message
news:sKwHd.59$Dz2.5@fe07.lga...
>
> Naomi, TS cost me my first wife, 2 carreers, my former family who are now
> dead o me, among other things...............but that was my first 50 yrs
now
> I have turned this around........my self esteem returned when I started
> fighting back, both legallyand ethincaly......and the rest of the world be
> dammed, is my attitude

>
>
>
>
> <tsrules@gobot.com> wrote in message
news:Hw8Hd.121140$KO5.5341@clgrps13...
esteem.[vbcol=seagreen]
say[vbcol=seagreen]
to[vbcol=seagreen]
this[vbcol=seagreen]
my[vbcol=seagreen]
third[vbcol=seagreen]
suddenly[vbcol=seagreen]
for[vbcol=seagreen]
>
>