Tourette support - neurologist visit

Author

neurologist visit

SOandSO@webtv.net

2004-08-19, 7:13 pm

I don't know what to say, He said there is no way that I could have TS,
unless he had some records, that saying I have St. Vitis Dance could
mean anything.On my insistence he stopped the Klonipin. when I said I
want to be weaned off slowly , it wasn't necessary B/C it was a small
dosage. Renee didn't agree with him and told him so, B/C she sees me in
action. I was very calm there and no tics
He suggested I get a second opinion, either in Gainsville with a
referral or Miami I pay.

Jodi

2004-08-19, 7:13 pm

<SOandSO@webtv.net> wrote in message
news:19285-412506DE-24@storefull-3253.bay.webtv.net...
> I don't know what to say, He said there is no way that I could have TS,
> unless he had some records, that saying I have St. Vitis Dance could
> mean anything.On my insistence he stopped the Klonipin. when I said I
> want to be weaned off slowly , it wasn't necessary B/C it was a small
> dosage. Renee didn't agree with him and told him so, B/C she sees me in
> action. I was very calm there and no tics
> He suggested I get a second opinion, either in Gainsville with a
> referral or Miami I pay.
>

Is there a reason you want a dx's? Are the tics bothering you enough to
want meds? Was this dr a ts specialist? Afa being calm there, that is
often the case. Sometimes parents will video their kids ticcing to show the
dr. TSA can give you dr names that specialize in TS if you are interested.

Jodi

SOandSO@webtv.net

2004-08-19, 7:13 pm

I was interested in only changing my label. and getting off the Klonipin
which I will wean myself off, Renee was pissed off that all my info
meant nothing and told him so.
I can live with TS without med. I manage very nicely.
You are so sweet to always answer my post. thanks.
Fay

SOandSO@webtv.net

2004-08-19, 7:13 pm

P.S. The Dr. is a Neurologist.
Fay

J&S Bouchard

2004-08-20, 2:09 am

<SOandSO@webtv.net> wrote in message
news:19285-412506DE-24@storefull-3253.bay.webtv.net...
> I don't know what to say, He said there is no way that I could have TS,
> unless he had some records, that saying I have St. Vitis Dance could
> mean anything.On my insistence he stopped the Klonipin. when I said I
> want to be weaned off slowly , it wasn't necessary B/C it was a small
> dosage. Renee didn't agree with him and told him so, B/C she sees me in
> action. I was very calm there and no tics
> He suggested I get a second opinion, either in Gainsville with a
> referral or Miami I pay.
>

When I first brought my son to the neurologist for a diagnosis, the neuro
told me: yes, he has TS but why do you want to label him?
I was shocked at his question. As a parent, I needed to know what he had.
But I told the neuro that the teachers were asking questions which they
were.
I did not have good experiences with many doctors for my son.
--
Joanne
mom to Mat the Amazing!

Blurt Durtwurd

2004-08-20, 4:08 am

In article <26393-41251C86-302@storefull-3251.bay.webtv.net>,
SOandSO@webtv.net wrote:

>P.S. The Dr. is a Neurologist.
>Fay

It's a shame so many neurologists are so misinformed about TS.

Blurt

Blurt Durtwurd

2004-08-20, 4:08 am

In article <26393-41251C09-301@storefull-3251.bay.webtv.net>,
SOandSO@webtv.net wrote:

>I was interested in only changing my label. and getting off the Klonipin
>which I will wean myself off, Renee was pissed off that all my info
>meant nothing and told him so.

Wayta go, Renee!

>I can live with TS without med. I manage very nicely.
>You are so sweet to always answer my post. thanks.
>Fay

YJIVNETSTIA

Hope you're feeling better, Jodi!

(YJIVNETSTIA = Yes, Jodi is *VERY* nice, even though she talks in
acronyms.)

Chat, Usenet, and Text Message
Acronyms and Abbreviations

http://www.geocities.com/eedd88/abbreviations.html

Jodi

2004-08-20, 4:08 am

"Blurt Durtwurd" <blurtdurtwurd@worldnet.att.net> wrote in message
news:kmbbi0l1a7umlionib895hi7sl2q6v0iaq@4ax.com...
> In article <26393-41251C09-301@storefull-3251.bay.webtv.net>,

> Hope you're feeling better, Jodi!

Yes, thank you

> (YJIVNETSTIA = Yes, Jodi is *VERY* nice, even though she talks in
> acronyms.)

I guess i'm lazy ;) I didn't realize i used them THAT much. hehe Is that
a bad thing?

jodi

> Chat, Usenet, and Text Message
> Acronyms and Abbreviations
>
> http://www.geocities.com/eedd88/abbreviations.html

SOandSO@webtv.net

2004-08-20, 11:11 am

I am my own Dr. B/C I know myself better. being labeled TS isn't a
dirty word and glad to be one of you.
Fay

SOandSO@webtv.net

2004-08-20, 11:11 am

Burt the Drs. in Fl. see mostly old people. How many have TS, one me.
Fay

Fenisz

2004-08-21, 11:23 am

>It's a shame so many neurologists are so misinformed about TS.
>
>Blurt

I had a case where the Neurologist was giving me Haldol. Not because I needed
it, but because he was so uninformed and all that he knew was that Haldol was
used for people with TS.
BAD NEUROLOGIST CREED:
Got TS? Got Insurance? Then take two Haldol and call me in the morning.
Don't have Insurance, then don't bother calling.

SOandSO@webtv.net

2004-08-21, 7:41 pm

Jodi , I am now weaning off the Klonipin.
I can manage very well with out any med. First I will see in a month
with out med How I do. I am my own Dr.He was just a neurologist Went to
him twice and no more. I have all the answers thanks for averyone's
help.
Fat

Blurt Durtwurd

2004-08-21, 7:41 pm

In article <10ibcndsat04484@corp.supernews.com>,
Jodi wrote:

>"Blurt Durtwurd" <blurtdurtwurd@worldnet.att.net> wrote in message
>news:kmbbi0l1a7umlionib895hi7sl2q6v0iaq@4ax.com...
>
>
>I guess i'm lazy ;) I didn't realize i used them THAT much.

I'm not always immediately aware of it when I tic. (You do realize I
used the word "talk", don't you?)

>hehe Is that
>a bad thing?

Well, no, probably not. People normally limit most of the acronyms
they use to text situations. When was the last time you saw a funny
movie and the audience was yelling "LOL!"?
[vbcol=seagreen]
>
>jodi
>

More useful would be a list of health related acronyms (like ADD, OCD,
etc...). Anybody have a link? Sure would be helpful for me. I
would've posted that, too, if I had one. In fact, both would be. I
often do not understand either type of acronym. At this point in my
ast days, I do understand most of the ones used here, but far from
all.

Blurt

Blurt Durtwurd

2004-08-21, 7:41 pm

On Fri, 20 Aug 2004 11:07:11 -0400, in article
<13169-4126139F-385@storefull-3252.bay.webtv.net>, SOandSO@webtv.net
wrote:

>being labeled TS isn't a
>dirty word and glad to be one of you.
>Fay

And I'm glad to be one of YOU, too!

Blurt

Blurt Durtwurd

2004-08-21, 7:41 pm

n article <13171-41261434-32@storefull-3252.bay.webtv.net>,
SOandSO@webtv.net wrote:

>Burt

Blurt. My name is spelled B-l-u-r-t, but it's pronounced "Josh", so I
tell people here they can call me either "Blurt" or "Josh".

>the Drs. in Fl. see mostly old people. How many have TS, one me.
>Fay

You make a good point. However, there are probably many elderly
persons with undiagnosed TS. And maybe even many who've seen
neurologists about their symptoms who were promptly misdiagnosed.

I've never seen any info anywhere suggesting that adults with TS lose
their TS when they get older, but I would guess that the older one is,
the more likely their TS would be misdiagnosed when first presenting
their symptoms to a neurologist.

Blurt

SOandSO@webtv.net

2004-08-21, 10:13 pm

I never noticed that there was a L in your name. I have to have a
cataract removed. some time soon.I had one done 4 years ago and it took
all this time to developed. I notice I sometime sign off Fat. I blame
that on my eyes also.
Fay

RENEE S

2004-08-22, 11:10 am

Fay's Dr wanted to know why she needed a dx....I replied probably for a
sense of well being... who wants to be in limbo?...
He felt we were attacking him... trying to prove him wrong...I guess we
were....He also said her jerks were psychosomatic.. . I disagreed with
him...
Most patients don't question their Drs... but I have a big mouth, and
love to ask questions so I can understand...and love even more to
disagree.
The first med he suggested was halidol...after Fay stated she did not
want to feel drowsey during the day...Whats with that!...Thanks for the
venting space...Renee

Randall Bart

2004-08-22, 10:10 pm

'Twas Sun, 22 Aug 2004 09:32:59 -0400 when all alt.support.tourette stood
in awe as REN129@webtv.net (RENEE S) uttered:

>He also said her jerks were psychosomatic.

What is the difference between psychosomatic jerks and Tourette Syndrome?

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Blurt Durtwurd

2004-08-25, 12:04 pm

In article <90ihi05m7ts39m3ofbu7edcgja9vcjj257@4ax.com>,
Randall Bart wrote:

>'Twas Sun, 22 Aug 2004 09:32:59 -0400 when all alt.support.tourette stood
>in awe as REN129@webtv.net (RENEE S) uttered:
>
>
>What is the difference between psychosomatic jerks and Tourette Syndrome?

Very interesting. After looking it up, it's clear to me that I'd
never understood the word "psychosomatic" before. I'm not sure I
clearly understand it still, but it looks to me like tics (or at least
many of them) are either psychosomatic or the reverse of
psychosomatic.

Blurt

Blurt Durtwurd

2004-08-31, 10:09 pm