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Home > Archive > Tourette support > August 2004 > TS med???
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| SOandSO@webtv.net 2004-08-14, 10:56 am |
| I need your help before I go to the Neuo on Thur. Aug 19.
I realised that I have been missdiognosed for at least 30 years.. In the
90 I was labeled Myoclonic and put on Klonipin. I had no memory of my
childhood untill 2 weeks ago 80 years too late.
Now that I remember my mom telling me I had St.Vitis Dance, which I
didn't comprehend.
Is Klonipn med. for TS?
If not I want to be weened off it. And take it from there.
Thank you for all your help. and bringing my memoty back to me.
FayP
| |
| Jo Cohen 2004-08-14, 10:56 am |
|
<SOandSO@webtv.net> wrote in message
news:26679-411E139C-65@storefull-3258.bay.webtv.net...
> I need your help before I go to the Neuo on Thur. Aug 19.
>
> I realised that I have been missdiognosed for at least 30 years.. In
the
> 90 I was labeled Myoclonic and put on Klonipin. I had no memory of
my
> childhood untill 2 weeks ago 80 years too late.
> Now that I remember my mom telling me I had St.Vitis Dance, which I
> didn't comprehend.
>
> Is Klonipn med. for TS?
>
> If not I want to be weened off it. And take it from there.
> Thank you for all your help. and bringing my memoty back to me.
> FayP
>
Dear Fay,
This must be a real awakening for you - to be realizing and coping
with this after all these years. Klonopin is an anti-anxiety drug,
that can also help with tics somewhat. It can be difficult to wean off
of, and you should only do that slowly and under a doctor's
supervision.
Ps- It's never "too late" to live and learn... Good luck with the
neuro appointment.
Keep us posted.
Jo
| |
| Blurt Durtwurd 2004-08-14, 10:09 pm |
| In article <26679-411E139C-65@storefull-3258.bay.webtv.net>,
SOandSO@webtv.net wrote:
>I need your help before I go to the Neuo on Thur. Aug 19.
>
>I realised that I have been missdiognosed for at least 30 years.. In the
>90 I was labeled Myoclonic and put on Klonipin. I had no memory of my
>childhood untill 2 weeks ago 80 years too late.
>Now that I remember my mom telling me I had St.Vitis Dance, which I
>didn't comprehend.
>
>Is Klonipn med. for TS?
>
>If not I want to be weened off it. And take it from there.
>Thank you for all your help. and bringing my memoty back to me.
>FayP
Klonopin is not usually an effective medication for tics, but for some
people it has helped a bit. Joanne's advice about consulting your
doctor for help if you want to wean off it is important. What is your
daily dosage?
I've seen nothing in any of your messages that would make me believe
that you need any medication for your tics. Perhaps I missed
something in your messages, but if the tics are not causing you
problems, then medicating them would probably cause more problems than
any good it might do.
If your ticcing causes you physical or emotional pain, it might help
to discuss that here. People might have helpful suggestions. But
make sure to tell the neurologist what kind of effect your tics have
on your life. And be certain the neurologist is knowledgable
regarding TS (many aren't) or at least willing to acquire the
knowledge.
Good luck, Fay, and please let us know how your neurologist visit
goes.
Blurt
| |
| SOandSO@webtv.net 2004-08-15, 2:13 am |
| Thanks Jo & Burt
I take 0ne clonazpenam 0.5mg. before I retire. I was supposed to take 2
12 hours apart.I asked and was granted to take one
I am very social, play cards, drive, go to meetings ETC. I stopped
driving 2 weeks ago at 89.
I am a vegetarian and very healthy, that helps.
I seem to let it all out when I am alone.
I now have lots of loud vocal tics. I don't remember doing that until I
reached my 70. Now I know I had it at 9 years when I was transferred to
a special class for 1 year ,then on to Jr. High ( 7 & 8) then made it to
High (9) and then to vocational school.Took up sewing I bet I had ADHD I
wasn't the smartest kid on the block.lol
Fay
I don't Know what ADHD means.
| |
| Jo Cohen 2004-08-15, 2:13 am |
|
<SOandSO@webtv.net> wrote in message
news:5189-411E8D63-303@storefull-3251.bay.webtv.net...
> Thanks Jo & Burt
> I take 0ne clonazpenam 0.5mg. before I retire. I was supposed to
take 2
> 12 hours apart.I asked and was granted to take one
> I am very social, play cards, drive, go to meetings ETC. I stopped
> driving 2 weeks ago at 89.
> I am a vegetarian and very healthy, that helps.
> I seem to let it all out when I am alone.
> I now have lots of loud vocal tics. I don't remember doing that
until I
> reached my 70. Now I know I had it at 9 years when I was transferred
to
> a special class for 1 year ,then on to Jr. High ( 7 & 8) then made
it to
> High (9) and then to vocational school.Took up sewing I bet I had
ADHD I
> wasn't the smartest kid on the block.lol
> Fay
>
> I don't Know what ADHD means.
Attention Deficit Hyperactivity Disorder - one of the "ADD's".
I'm sure not driving is a great loss for you....it's an adjustment
period for you in many ways, and I give you LOTS of credit to be
addressing these issues at this stage in your life. Kudos to you!
Unless you are particularly anxious during the day, one .5mg
Clonazepam is not a lot to be taking at night (for most people) and it
can help you get a better quality sleep, relax tense muscles, etc.
For many of us, we tic loudest when alone! That is fairly common. Just
keep in mind that you are still the same person you always
were.....but I'm sure peeling back the layers of the "onion" as it
were and realizing more about yourself is quite an eye-opener for you!
I hope you don't let it disconcert you too much - if it does, you will
find wonderful people here to support you, answer questions, and
listen in general. I'm glad to hear you are healthy...as for the
vegan-ism, I applaud it but boy I like my steak rare! <smile>
By the way, I was wondering where you grew up? Certain areas of this
country and Canada, France, etc knew more about St. Vitus' Dance "back
then" than others did.....in Canada, France, and parts of Maine (near
Greenville, Moosehead area) it was called "The Jumping Frenchman". It
was often mistaken for a chorea.....
Take care,
Jo
>
| |
| SOandSO@webtv.net 2004-08-15, 7:15 am |
| I am a Jersey gal. lived in Atlantic City all my school age. Then Bergen
County N. jersey all my married life.My hubby and I retired to florida
25 years ago Lost my irv. 6 mo before my 50 anniversary. Had a great
life. even now.
Fay
PS
Jo that was a very sweet letter and made me feel welcome to the group
Thanks
| |
| Jo Cohen 2004-08-15, 7:15 am |
|
<SOandSO@webtv.net> wrote in message
news:28239-411EC92D-356@storefull-3254.bay.webtv.net...
> I am a Jersey gal. lived in Atlantic City all my school age. Then
Bergen
> County N. jersey all my married life.My hubby and I retired to
florida
> 25 years ago Lost my irv. 6 mo before my 50 anniversary. Had a great
> life. even now.
> Fay
>
> PS
> Jo that was a very sweet letter and made me feel welcome to the
group
> Thanks
>
You're welcome!
A Joisey Goil! Oy! Your spirit is wonderful - so refreshing!
Florida - what a mess and tragedy today  I have three close friends
there.....one who is right in Ft. Meyers. I haven't heard from him but
he might have evacuated. Such is the wrath of Mother Nature.....
We are feeling the winds and rain here in Connecticut now....probably
will all night long.
Jo
| |
|
|
"Jo Cohen" <jocohen@comcast.net> wrote
> By the way, I was wondering where you grew up? Certain areas of this
> country and Canada, France, etc knew more about St. Vitus' Dance "back
> then" than others did.....in Canada, France, and parts of Maine (near
> Greenville, Moosehead area) it was called "The Jumping Frenchman". It
> was often mistaken for a chorea.....
>
> Take care,
>
> Jo
G'day to Jo and Fay and all you other wonderful people,
St. Vitus Dance = Sydenham's Chorea. It's the same thing.
| |
| Jo Cohen 2004-08-15, 11:17 am |
|
"Lara" <kburra@tpg.com.au> wrote in message
news:411f0c4a@dnews.tpgi.com.au...
>
> "Jo Cohen" <jocohen@comcast.net> wrote
>
this[vbcol=seagreen]
"back[vbcol=seagreen]
(near[vbcol=seagreen]
It[vbcol=seagreen]
>
> G'day to Jo and Fay and all you other wonderful people,
>
> St. Vitus Dance = Sydenham's Chorea. It's the same thing.
>
HI there, our Old Aussie friend! How ARE you? I've missed you here!
What's been new lately?
Jo
>
>
| |
| Jo Cohen 2004-08-17, 7:09 am |
|
<SOandSO@webtv.net> wrote in message
news:26679-411E139C-65@storefull-3258.bay.webtv.net...
> I need your help before I go to the Neuo on Thur. Aug 19.
>
> I realised that I have been missdiognosed for at least 30 years.. In
the
> 90 I was labeled Myoclonic and put on Klonipin. I had no memory of
my
> childhood untill 2 weeks ago 80 years too late.
> Now that I remember my mom telling me I had St.Vitis Dance, which I
> didn't comprehend.
>
> Is Klonipn med. for TS?
>
> If not I want to be weened off it. And take it from there.
> Thank you for all your help. and bringing my memoty back to me.
> FayP
>
Dear Fay,
This must be a real awakening for you - to be realizing and coping
with this after all these years. Klonopin is an anti-anxiety drug,
that can also help with tics somewhat. It can be difficult to wean off
of, and you should only do that slowly and under a doctor's
supervision.
Ps- It's never "too late" to live and learn... Good luck with the
neuro appointment.
Keep us posted.
Jo
| |
| Jo Cohen 2004-08-17, 7:09 am |
|
"Blurt Durtwurd" <blurtdurtwurd@worldnet.att.net> wrote in message
news:6hnsh09n3lqe18g9pn6uk7bjl7mqfkbuou@4ax.com...
> In article <26679-411E139C-65@storefull-3258.bay.webtv.net>,
> SOandSO@webtv.net wrote:
>
In the[vbcol=seagreen]
my[vbcol=seagreen]
>
> Klonopin is not usually an effective medication for tics, but for
some
> people it has helped a bit. Joanne's advice about consulting your
> doctor for help if you want to wean off it is important. What is
your
> daily dosage?
>
> I've seen nothing in any of your messages that would make me believe
> that you need any medication for your tics. Perhaps I missed
> something in your messages, but if the tics are not causing you
> problems, then medicating them would probably cause more problems
than
> any good it might do.
>
> If your ticcing causes you physical or emotional pain, it might help
> to discuss that here. People might have helpful suggestions. But
> make sure to tell the neurologist what kind of effect your tics have
> on your life. And be certain the neurologist is knowledgable
> regarding TS (many aren't) or at least willing to acquire the
> knowledge.
>
> Good luck, Fay, and please let us know how your neurologist visit
> goes.
>
> Blurt
Good advice from Blurt!
Jo
| |
| Jo Cohen 2004-08-17, 11:09 am |
|
<SOandSO@webtv.net> wrote in message
news:5189-411E8D63-303@storefull-3251.bay.webtv.net...
> Thanks Jo & Burt
> I take 0ne clonazpenam 0.5mg. before I retire. I was supposed to
take 2
> 12 hours apart.I asked and was granted to take one
> I am very social, play cards, drive, go to meetings ETC. I stopped
> driving 2 weeks ago at 89.
> I am a vegetarian and very healthy, that helps.
> I seem to let it all out when I am alone.
> I now have lots of loud vocal tics. I don't remember doing that
until I
> reached my 70. Now I know I had it at 9 years when I was transferred
to
> a special class for 1 year ,then on to Jr. High ( 7 & 8) then made
it to
> High (9) and then to vocational school.Took up sewing I bet I had
ADHD I
> wasn't the smartest kid on the block.lol
> Fay
>
> I don't Know what ADHD means.
Attention Deficit Hyperactivity Disorder - one of the "ADD's".
I'm sure not driving is a great loss for you....it's an adjustment
period for you in many ways, and I give you LOTS of credit to be
addressing these issues at this stage in your life. Kudos to you!
Unless you are particularly anxious during the day, one .5mg
Clonazepam is not a lot to be taking at night (for most people) and it
can help you get a better quality sleep, relax tense muscles, etc.
For many of us, we tic loudest when alone! That is fairly common. Just
keep in mind that you are still the same person you always
were.....but I'm sure peeling back the layers of the "onion" as it
were and realizing more about yourself is quite an eye-opener for you!
I hope you don't let it disconcert you too much - if it does, you will
find wonderful people here to support you, answer questions, and
listen in general. I'm glad to hear you are healthy...as for the
vegan-ism, I applaud it but boy I like my steak rare! <smile>
By the way, I was wondering where you grew up? Certain areas of this
country and Canada, France, etc knew more about St. Vitus' Dance "back
then" than others did.....in Canada, France, and parts of Maine (near
Greenville, Moosehead area) it was called "The Jumping Frenchman". It
was often mistaken for a chorea.....
Take care,
Jo
>
| |
| Blurt Durtwurd 2004-08-17, 7:17 pm |
| In article <411f0c4a@dnews.tpgi.com.au>,
Lara wrote:
>G'day to Jo and Fay and all you other wonderful people,
Hi Lara! Great to see you! I hope you're having a good winter!
Weather forecast for Chicago, IL
Current conditions:
Mostly Cloudy
80°F
(27°C)
Humidity: 64 %
Wind Speed: SW 13 G 22 MPH
Barometer: 29.90" (1012.2 mb)
Dewpoint: 67°F (19°C)
Heat Index: 82°F (28°C)
Visibility: 10.00 mi.
Forecast:
This Afternoon: A 40 percent chance of showers and thunderstorms. Some
storms could be severe, with large hail and damaging winds. Mostly
cloudy, with a high near 79. West southwest wind between 10 and 15
mph.
Tonight: A 40 percent chance of showers and thunderstorms before 10pm.
Some storms could be severe, with large hail and damaging winds.
Patchy fog after 3am. Otherwise, partly cloudy, with a low around 66.
West southwest wind between 5 and 10 mph becoming calm.
Wednesday: A 50 percent chance of showers and thunderstorms after 3pm.
Partly cloudy, with a high around 84. Calm wind becoming southwest
between 10 and 15 mph.
Wednesday Night: A 50 percent chance of showers and thunderstorms.
Partly cloudy, with a low near 61. North northwest wind between 10 and
15 mph.
Thursday: Mostly sunny, with a high around 71. North northeast wind
between 5 and 15 mph.
Thursday Night: Partly cloudy, with a low around 65.
Friday: A 50 percent chance of showers and thunderblurbs. Mostly
cloudy, with a high around 73.
Friday Night: A chance of showers. Partly cloudy, with a low around
63.
Saturday: Partly cloudy, with a high around 74.
Saturday Night: Mostly clear, with a low near 63.
Sunday: Partly cloudy, with a high around 75.
Sunday Night: Partly cloudy, with a low around 65.
Monday: Partly cloudy, with a high around 78.
Blurt
| |
| Jo Cohen 2004-08-18, 10:10 pm |
|
"Lara" <kburra@tpg.com.au> wrote in message
news:411f0c4a@dnews.tpgi.com.au...
>
> "Jo Cohen" <jocohen@comcast.net> wrote
>
this[vbcol=seagreen]
"back[vbcol=seagreen]
(near[vbcol=seagreen]
It[vbcol=seagreen]
>
> G'day to Jo and Fay and all you other wonderful people,
>
> St. Vitus Dance = Sydenham's Chorea. It's the same thing.
>
HI there, our Old Aussie friend! How ARE you? I've missed you here!
What's been new lately?
Jo
>
>
| |
| Randall Bart 2004-08-19, 2:09 am |
| 'Twas Sun, 15 Aug 2004 17:09:30 +1000 when all alt.support.tourette stood
in awe as "Lara" <kburra@tpg.com.au> uttered:
>St. Vitus Dance = Sydenham's Chorea. It's the same thing.
Except that many people who were diagnosed with St Vitus Dance actually
had Tourette Syndrome.
--
RB |\ © Randall Bart
aa |/ admin@RandallBart.spam.com Barticus@att.spam.net
nr |\ Please reply without spam I LOVE YOU 1-917-715-0831
dt ||\ It's only ones and zeros: http://character.brainthru.com
a |/ Masters in Disasters: http://disaster.brainthru.com
l |\ DOT-HS-808-065 The Church Of The Unauthorized Truth:
l |/ MS^7=6/28/107 http://yg.cotut.com mailto:s@cotut.com
| |
|
|
"Jo Cohen" <jocohen@comcast.net> wrote
> By the way, I was wondering where you grew up? Certain areas of this
> country and Canada, France, etc knew more about St. Vitus' Dance "back
> then" than others did.....in Canada, France, and parts of Maine (near
> Greenville, Moosehead area) it was called "The Jumping Frenchman". It
> was often mistaken for a chorea.....
>
> Take care,
>
> Jo
G'day to Jo and Fay and all you other wonderful people,
St. Vitus Dance = Sydenham's Chorea. It's the same thing.
| |
| SOandSO@webtv.net 2004-08-19, 10:10 pm |
| Thanks Jo & Burt
I take 0ne clonazpenam 0.5mg. before I retire. I was supposed to take 2
12 hours apart.I asked and was granted to take one
I am very social, play cards, drive, go to meetings ETC. I stopped
driving 2 weeks ago at 89.
I am a vegetarian and very healthy, that helps.
I seem to let it all out when I am alone.
I now have lots of loud vocal tics. I don't remember doing that until I
reached my 70. Now I know I had it at 9 years when I was transferred to
a special class for 1 year ,then on to Jr. High ( 7 & 8) then made it to
High (9) and then to vocational school.Took up sewing I bet I had ADHD I
wasn't the smartest kid on the block.lol
Fay
I don't Know what ADHD means.
| |
| SOandSO@webtv.net 2004-08-19, 10:10 pm |
| I am a Jersey gal. lived in Atlantic City all my school age. Then Bergen
County N. jersey all my married life.My hubby and I retired to florida
25 years ago Lost my irv. 6 mo before my 50 anniversary. Had a great
life. even now.
Fay
PS
Jo that was a very sweet letter and made me feel welcome to the group
Thanks
| |
| Jo Cohen 2004-08-19, 10:10 pm |
|
<SOandSO@webtv.net> wrote in message
news:28239-411EC92D-356@storefull-3254.bay.webtv.net...
> I am a Jersey gal. lived in Atlantic City all my school age. Then
Bergen
> County N. jersey all my married life.My hubby and I retired to
florida
> 25 years ago Lost my irv. 6 mo before my 50 anniversary. Had a great
> life. even now.
> Fay
>
> PS
> Jo that was a very sweet letter and made me feel welcome to the
group
> Thanks
>
You're welcome!
A Joisey Goil! Oy! Your spirit is wonderful - so refreshing!
Florida - what a mess and tragedy today I have three close friends
there.....one who is right in Ft. Meyers. I haven't heard from him but
he might have evacuated. Such is the wrath of Mother Nature.....
We are feeling the winds and rain here in Connecticut now....probably
will all night long.
Jo
| |
|
| Blurt Durtwurd wrote:
> Hi Lara! Great to see you! I hope you're having a good winter!
Hi, Lara !!
(Been wondering where our SC expert was :-)
> Weather forecast for Chicago, IL
> This Afternoon: A 40 percent chance of showers and thunderstorms.
> Tonight: A 40 percent chance of showers and thunderstorms before 10pm.
> Wednesday: A 50 percent chance of showers and thunderstorms after 3pm.
> Wednesday Night: A 50 percent chance of showers and thunderstorms.
> Thursday: Mostly sunny, with a high around 71.
ah ha !! You're having a better summer than we are !
> Thursday Night: Partly cloudy, with a low around 65.
> Friday: A 50 percent chance of showers and thunderblurbs.
Thunderblurbs on the weather forecast ???
--
Tourette Syndrome - Now What?
http://tourettenowwhat.tripod.com
| |
| Blurt Durtwurd 2004-08-21, 7:41 pm |
| n article <4125F4A2.6B7AB77F@optonline.net>,
TSNW wrote:
>Blurt Durtwurd wrote:
>
>
>
>ah ha !! You're having a better summer than we are !
>
>
>Thunderblurbs on the weather forecast ???
Uh oh. I just heard one that sounded like "BUILD THEE AN ARK!"
Blurt
| |
|
| Blurt Durtwurd wrote:
> TSNW wrote:
>
> Uh oh. I just heard one that sounded like "BUILD THEE AN ARK!"
LOL -- you're reading my e-mail ...
I wrote to all my neighbors this afternoon, asking for the neighborhood
catastrophe plan and Noah's blueprints !
--
Tourette Syndrome - Now What?
http://tourettenowwhat.tripod.com
| |
|
| Blurt Durtwurd wrote:
> Hi Lara! Great to see you! I hope you're having a good winter!
Hi, Lara !!
(Been wondering where our SC expert was :-)
> Weather forecast for Chicago, IL
> This Afternoon: A 40 percent chance of showers and thunderstorms.
> Tonight: A 40 percent chance of showers and thunderstorms before 10pm.
> Wednesday: A 50 percent chance of showers and thunderstorms after 3pm.
> Wednesday Night: A 50 percent chance of showers and thunderstorms.
> Thursday: Mostly sunny, with a high around 71.
ah ha !! You're having a better summer than we are !
> Thursday Night: Partly cloudy, with a low around 65.
> Friday: A 50 percent chance of showers and thunderblurbs.
Thunderblurbs on the weather forecast ???
--
Tourette Syndrome - Now What?
http://tourettenowwhat.tripod.com
|
| |
|
|