| kathleen 2005-04-28, 10:49 pm |
| Agree.
What do you want to do, then?
Want to organize an international
letter-writing campaign complaining
of You Know Which agency in Atlanta?
Copy the WHO?
I could put a template on my website
for people to copy down. Or, we could
make it something that the Lyme webrings
all share.
If there are 800,000 people in this country
alone who have CFIDS (according to the CDC,
so that means more like 8 million), imagine
how many there are in Europe and Australia?
We could do a lot. Contrary to popular
belief, I still have some connections.
What happened in the past, when we tried
to form an international patient advocacy
group, was, we formed one, then all the groups
broke off, and formed their own little
autocracies, headed by local pinheads.
I ran ActionLyme in a democratic way, only
we yeilded little actual action. I maintain
hope, as does Lisa, and probably everyone
else, that eventually we will get pissed
enough to do something global- PACIFIST-
Global.
You know, targetted not at each other,
for a change. (Just nevermind Weisman, he
is hopeless.)
Usually elected officials in this country
respond to a mass letter writing campaign.
That's how we got New York going... although
it never went anywhere, because of the splinter
groups and pinheaded local activist autocracies.
This news from CDC is good, except I am a
little leary about them now screening people
of color- that chronically rejected group-
that group who get pared the cheap end of
the stick in every arena... for "Chronic Illness"
in Georgia, because I am afraid the outcome will
be the usual- "These people are not sick, they
are just depressed." Or, "Their problem is poverty
and not illness."
To which, The Heritage Foundation will respond:
"Quit whining, your problems are your own
stupid fault (Sally Satel)."
http://www.sallysatelmd.com/
CDC says they want to take blood this time,
from CFIDS people, which is a switch from psychiatric
surveys as the usual means to determine CFIDS is not
real.
Whattya think?
The issue is funding, but we, in the US, funded
huge studies to determine Autism is not due to the
Thimerosal, when CDC knew it wasn't- It's due
to the MMR antigens themselves (revealed by
the fact that CDC has now declared Rubella
finally gone- "Just nevermind those pesky break-
through strains, and the post-vaccinal encephalitis
resulting in the phenomenal increase in "Autism"...).
And we funded huge studies to say we are too
fat, and therefore unhealthy, only for that to be
retracted by CDC.
Everyone should study the CDC's website, if
they want to know what they intend for us.
Next its cop-enforced quarantines- But the prisons
are already overflowing with tuberculosis and
AIDS. What do they have in mind? First prison,
then Leper Colonies?
We should all write Small Business Innovation
grant proposals for cash to build such leper
colonies and related prisons for people will
illnesses. I don't see anyone starting a
"National string of psychiatric hospitals for
adult victims of MMR brain damage."
That should be a healthy market.
I've tried organizing. Rallying Lyme
patients to collective action is harder
than herding cats. The CFIDS/ME patients
are our twins. And they refuse to join
us even in simply taking on the CDC. We
told them they could HAVE their non-diagnosis
if they love so much being abused, just
join us in an action to call on the CDC
to be accountable. I got the same result
with the Autistic parents group...
All the little nitwit e-list managers so much
want to be boss, that nothing gets done.
People fail to see what the result is
of not having paid lobbyists. Said more
clearly: People fail to realize that we have
to rely on each other if we are not rich.
Said another way: How about we start
a Democracy and have a Constitution. The
First Amendment could be Free Speech.
Ya think?
Kathleen
Martijn wrote:
> lyme rayja wrote:
>
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>
> Lisa, we know your points. It doesn't help if you attack people like
> this, try not to be so angry and calm down a little.
>
> This counts for Lisa, Kathleen, derdrittemann and a_weisman: calm
down
> and stop all this cruelty, I'm starting to be fed up with this. You
> don't have to respond to each other's cruelty with the same cruelty.
>
> "An eye for an eye leaves the whole blind".
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