Lyme Disease - British Lymies Tell Tony Blair the News

Author

British Lymies Tell Tony Blair the News

lyme rayja

2004-11-09, 11:07 am

Lymies from the four corners of the United Kingdom solemnly handed in
a petition to 10 Downing St, home of Prime Minister Tony Blair, on
Thursday. The petition included testimonials from 50 people whose
lives have been destroyed by the refusal to acknowledge the
seriousness and extent of this disease in Britain.

The rally came about thanks to the hard work of Wendy Fox, who suffers
not only from Lyme but also several co-infections. Wendy, 37, formerly
worked as a zoo-keeper. Today she is paraplegic as a result of Lyme
disease, and arrived in a wheelchair.

Wendy was originally told (like thousands of others were) that she had
"chronic fatigue syndrome". By the time she was correctly diagnosed
with Lyme, it was too late. She is now forced to turn to the public
for funds to pay for treatment to stop her health deteriorating even
further, as the National Health Service has said it is too expensive.
Lisa

Tbdbullseye

2004-11-16, 4:30 pm

Thanks, Lisa! Was there an article in any London paper (or paper in Scotland)
about this event? If so, which and do you have a website for the article?

Thanks again,
Ann - OH

lyme rayja

2004-11-16, 4:30 pm

tbdbullseye@aol.com (Tbdbullseye) wrote in message news:<20041110145300.07902.00000071@mb-m07.aol.com>...
> Thanks, Lisa! Was there an article in any London paper (or paper in Scotland)
> about this event? If so, which and do you have a website for the article?
>
> Thanks again,
> Ann - OH

Hi Ann,

This was the first ever action by UK Lymies and we broke through the
traditional media silence and got some coverage on national and local
TV. However, the BBC managed to chatter on and on about mosquitoes in
the context of Lyme and forgot to mention ticks. Scottish TV did even
worse by reporting one woman's story under the headline "Edinburg
Mother with Rare Disease takes her Protest to No 10". I suppose they
must have consulted our resident Lyme-liar-in-chief, the corrupt Susan
O'Connell, to learn that it is "rare".

Still, it was an important beginning. I will put more details and some
photos on the Lyme-rage website in next day or so.

Apology to Wendy - I made a mistake in my previous post. Wendy was not
diagnosed with CFS. Rather, her illness was misdiagnosed as
stress-related, then later dismissed as "post Lyme syndrome". Today
she is paraplegic from her tick borne diseases , extremely ill and
with multi-organ involvement.
Lisa

Tbdbullseye

2004-11-16, 4:30 pm

Here is a follow-up article on the efforts of Wendy and all the other good
people who participated in this effort.
Ann - OH

http://www.barnsleytoday.co.uk/View...rticleid=887872

Barnsley News [UK]

13 November 2004
Woman wins fight for aid to get treatment

A WOMAN has won her fight to receive £20,000 a year treatment on the NHS.

Wendy Fox, aged 37, has chronic Lyme disease, a serious bacterial infection
passed by the bites of infected ticks, which has attacked every part of her
body.
The mother-of-one from Wath-on-Dearne, who is paralysed from the waist down and
needs to use a wheelchair has been told that the NHS in Rotherham will now fund
drugs costing £20,000 a year, which she was previously denied.

Mrs Fox travelled to Downing Street recently to call for the Government to make
more money to make more resources available to fund better treatment for people
with Lyme disease. She says she is pleased to have won an appeal for funding
from Rotherham Primary Care Trust.

"I am of course thrilled by this decision and I am grateful for the PCT for
funding my treatment," said Mrs Fox. "But I am still desperately sad that I had
to battle so hard and at great expense. What is even more sad is that countless
people are in the same position."

Elsewhere in the world, she says the treatment is much better, and the
condition is recognised by the medical profession.

Mrs Fox said: "In the UK many GPs do not know what Lyme disease is, let alone
how to treat it. As there are already guidelines in place in the US then it is
my intention to produce a leaflet for all UK GPs that explains the issues
surrounding Lyme disease and the correct methods of treatment as per the
guidelines designed by US Lyme experts.

"I will be continuing to fight for the treatment of other sufferers while
receiving my own treatment on the NHS," she added.

Mrs Fox, a former zoo keeper, does not know how she came to get the disease.
Ticks can live on animals or in long grass. She was diagnosed ten years ago,
and says her health has steadily worsened.

13 November 2004

lyme rayja

2004-11-16, 4:30 pm

Yes, I think it's really important to note that it took the threat of
a protest at Downing St. to force our health system to give Wendy the
treatment she so desperately needs.

Moral - we get nothing until we fight for it.

A correction to my last post - only the Scottish national TV covered
the story. GMTV, Sky, BBC and all other top national news here in the
UK did interviews, but never published/broadcast them.

Sky made it clear that they would be dropping the story after Wendy
was offered her treatment, even though they were told that there are
countless others in this country denied treatment and/or diagnosis.
Lisa

tbdbullseye@aol.com (Tbdbullseye) wrote in message news:<20041114113536.11383.00000115@mb-m29.aol.com>...
> Here is a follow-up article on the efforts of Wendy and all the other good
> people who participated in this effort.
> Ann - OH
>
> http://www.barnsleytoday.co.uk/View...rticleid=887872
>
> Barnsley News [UK]
>
> 13 November 2004
> Woman wins fight for aid to get treatment
>
> A WOMAN has won her fight to receive £20,000 a year treatment on the NHS.
>
> Wendy Fox, aged 37, has chronic Lyme disease, a serious bacterial infection
> passed by the bites of infected ticks, which has attacked every part of her
> body.
> The mother-of-one from Wath-on-Dearne, who is paralysed from the waist down and
> needs to use a wheelchair has been told that the NHS in Rotherham will now fund
> drugs costing £20,000 a year, which she was previously denied.
>
> Mrs Fox travelled to Downing Street recently to call for the Government to make
> more money to make more resources available to fund better treatment for people
> with Lyme disease. She says she is pleased to have won an appeal for funding
> from Rotherham Primary Care Trust.
>
> "I am of course thrilled by this decision and I am grateful for the PCT for
> funding my treatment," said Mrs Fox. "But I am still desperately sad that I had
> to battle so hard and at great expense. What is even more sad is that countless
> people are in the same position."
>
> Elsewhere in the world, she says the treatment is much better, and the
> condition is recognised by the medical profession.
>
> Mrs Fox said: "In the UK many GPs do not know what Lyme disease is, let alone
> how to treat it. As there are already guidelines in place in the US then it is
> my intention to produce a leaflet for all UK GPs that explains the issues
> surrounding Lyme disease and the correct methods of treatment as per the
> guidelines designed by US Lyme experts.
>
> "I will be continuing to fight for the treatment of other sufferers while
> receiving my own treatment on the NHS," she added.
>
> Mrs Fox, a former zoo keeper, does not know how she came to get the disease.
> Ticks can live on animals or in long grass. She was diagnosed ten years ago,
> and says her health has steadily worsened.
>
> 13 November 2004

Phyllis Mervine

2004-11-18, 11:13 am

lymerayja@yahoo.co.uk (lyme rayja) wrote in message news:<13f7f806.0411160958.6e2ee3e7@posting.google.com>...
> Yes, I think it's really important to note that it took the threat of
> a protest at Downing St. to force our health system to give Wendy the
> treatment she so desperately needs.
>
> Moral - we get nothing until we fight for it.
>
> A correction to my last post - only the Scottish national TV covered
> the story. GMTV, Sky, BBC and all other top national news here in the
> UK did interviews, but never published/broadcast them.
>
> Sky made it clear that they would be dropping the story after Wendy
> was offered her treatment, even though they were told that there are
> countless others in this country denied treatment and/or diagnosis.
> Lisa
>

Lisa, that is because NEWSpapers are interested in reporting NEWS.
Wendy made news, therefore they printed her story, and thank them for
that. That is their job. The fact that countless others are
languishing is not NEWS. If you can figure out other ways to create
NEWS, you will doubtless be successful at getting more coverage. The
AIDS activists certainly understood that, and we could learn something
from them.
Phyllis Mervine

A_Weisman

2004-11-18, 11:13 am

pmerv@direcway.com (Phyllis Mervine) wrote in message news:<e1aa732b.0411171553.35750898@posting.google.com>...
> lymerayja@yahoo.co.uk (lyme rayja) wrote in message news:<13f7f806.0411160958.6e2ee3e7@posting.google.com>...
>
> Lisa, that is because NEWSpapers are interested in reporting NEWS.
> Wendy made news, therefore they printed her story, and thank them for
> that. That is their job. The fact that countless others are
> languishing is not NEWS. If you can figure out other ways to create
> NEWS, you will doubtless be successful at getting more coverage. The
> AIDS activists certainly understood that, and we could learn something
> from them.
> Phyllis Mervine

Well assuming that there is any cause and effect between the
"threatened protest" at 10 Downing street and the result in this one
isolated case, and assuming Phyllis is correct about newspapers
reporting news, I have a suggestion.

Lisa why not go to 10 Downing street and set yourself on fire? Make
sure the cameras are there. I'd like to see this.

Tbdbullseye

2004-11-20, 11:26 am

derdrittemann

2004-11-20, 11:26 am

a_weisman@yahoo.com (A_Weisman) wrote in message news:<e55e6d97.0411180622.3f3df9a6@posting.google.com>...
>
> "Lisa why not go to 10 Downing street and set yourself on fire? Make
> sure the cameras are there. I'd like to see this".

Oh, that's just mean and nasty.

If she sets her hair on fire...I would gladly piss on her head to put the fire out.

A_Weisman

2004-11-20, 11:26 am

derdrittemann2003@yahoo.com (derdrittemann) wrote in message news:<f2af2263.0411181928.449e7d40@posting.google.com>...
> a_weisman@yahoo.com (A_Weisman) wrote in message news:<e55e6d97.0411180622.3f3df9a6@posting.google.com>...
>
> Oh, that's just mean and nasty.

Sorry. ;-)

> If she sets her hair on fire...I would gladly piss on her head to put the fire out.

See that is why you are SIR Der. You are much more noble than I!

I will say that if she were hungry and lying on the ground, IF I had
some guarantee that she wouldn't bite my testicles off I would squat
over her head and shit in her mouth and she could eat that. OR as
Marie Antoinette (the first compassionate conservative) said, let them
eat cake or in this case shit.

Greatcod

2004-11-20, 11:26 am

What is disturbing is not how threatening you two are, but how strange.

derdrittemann

2004-11-20, 11:26 am

a_weisman@yahoo.com (A_Weisman) wrote in message news:<e55e6d97.0411190238.1b91c27b@posting.google.com>...
> derdrittemann2003@yahoo.com (derdrittemann) wrote in message news:<f2af2263.0411181928.449e7d40@posting.google.com>...
>
> Sorry. ;-)
>
>
> "See that is why you are SIR Der. You are much more noble than I"!

Always ready to go to the aid of a dumb slut in a dress...or is
that..."damsel in distress"?...(I always get that mixed up)...

>
> "I will say that if she were hungry and lying on the ground, IF I had
> some guarantee that she wouldn't bite my testicles off I would squat
> over her head and shit in her mouth and she could eat that. OR as
> Marie Antoinette (the first compassionate conservative) said, let them
> eat cake or in this case shit".

This sounds like a perfectly good waste of perfectly good waste to me.

On the other hand...you could send it to Pennsylvania...maybe it would
get "assigned".

lyme rayja

2004-11-20, 11:26 am

a_weisman@yahoo.com (A_Weisman) wrote in message
>
> Well assuming that there is any cause and effect between the
> "threatened protest" at 10 Downing street and the result in this one
> isolated case,

Well if there was no cause and effect, you'd have to say that it's a
hell of a co-incidence that after fighting to get proper treatment for
years, after being denied that treatment because of the disgusting
Steere camp "post-Lyme syndrome" doctrine and being allowed to
deteriorate to the point where she became paraplegic, that it is only
at the very moment that Wendy announces she will organise a protest to
Downing St that the authorities decide to have a change of heart.

>
> Lisa why not go to 10 Downing street and set yourself on fire? Make
> sure the cameras are there. I'd like to see this.

Naaah, you know that's not my style. I'm not into suicide at all.
We have had people do that kind of thing, not long ago a man denied
political asylum set himself alight, it made news but only just,
achieved nothing except that the poor man will be permanently
disfigured and in agony for the rest of his life.

Now if, on the other hand, we were to do something really spectacular
and different - say, for example, we set up a spit in the middle of
Trafalgar Square, import a demented American former Lyme Programme
Officer from the NIH (SACKED for harassing the patients movement), and
slowly roast him over a roaring funeral pyre built of printouts from
Quackwatch, the IDSA guidelines, and the EUCALB and CDC diagnostic
criteria while a groovy band plays on stage - well, no one's ever done
THAT before. And the British do love a barbecue.

On the other hand, the cops might not let me do it. They have very
strict by-laws about how much GARBAGE you can bring onto the Square.
Lisa

lyme rayja

2004-11-20, 11:26 am

a_weisman@yahoo.com (A_Weisman) wrote in message
>
>
> See that is why you are SIR Der. You are much more noble than I!
>
> I will say that if she were hungry and lying on the ground, IF I had
> some guarantee that she wouldn't bite my testicles off I would squat
> over her head and shit in her mouth and she could eat that. OR as
> Marie Antoinette (the first compassionate conservative) said, let them
> eat cake or in this case shit.

US Lymies - isn't it great to know your tax dollars are paying for
this man's salary?

Well, McSweegan, I mean McWeisman, since the only way you can get a
thrill is by having a woman swallow your sh*t, can I make a
suggestion? There's a certain doc runs a lab in the south of england.
I am sure she'd be happy to oblige you. After all, she's been
swallowing your sh*t for years. Not just swallowing it, but
regurgitating it to us, publishing it, imposing it as our Lyme policy,
and even trying, via Eucalb, to impose it on the whole of the European
Union. So why not give her a call?

Sheeesh. While it's not unusual to hear you spout your maniacal hatred
and threats of violence against anyone who complains about the
military TBD coverup , insurance whoredom, dangerous vaccines and the
rest of your Steere camp fraud, I have to say, you and your
lawyer-appendage seem to have excelled yourselves this time, in
reaching new depths of depravity not plumbed before even on sci-med.
So what's up?

Surely you're not upset just because we had a teensy-weensy Lyme demo
outside the Prime Minister's house here, are you?

Well Sweeg all I have to say is this:

YOU AINT SEEN NOTHING YET.
Lisa

Phyllis Mervine

2004-11-20, 11:26 am

lyme rayja

2004-11-21, 11:20 am

A_Weisman

2004-11-21, 11:20 am