Chronic pain Support - Chronic Pelvic Pain & Pain Relief... Please Help!

Author

Chronic Pelvic Pain & Pain Relief... Please Help!

Wendell

2006-01-27, 11:29 am

I'm 24, F, single, very active (or used to be), no kids and got a
history of ovarian cysts - removal of which casused adhesions.
Following laproscopy for adhesions, was given a diagnosis of Chronic
Pelvic Inflammatory Disease and simply told to make sure I have
children asap (not an option) and to try alternative therapies for the
pain. Saw another OBGYN a couple of weeks later for post-surgery
check-up who told me that he thought I had endo (although pain not
related to menstral cycle - just constant). Also had tests for cancer
and been on courses of antibiotics to remove cause if Chronic PID (has
made no difference)... They are not prepared to do a hystorectomy and
nor will they seem willing to look into the problem any more.

I have been having acupuncture through my GP and have started yoga and
light exercise. Pain relief wise I am taking Meptid, Amytriplyine
(40mg/day) and Maxalon for sickness from Meptid - reached this
combination after lots of trial and error but now pain-killers don't
seem to be working anymore, GP reluctant to put me on anything else
stronger as would have to be more narcotic based, and some days even
light exercise too much. So, my queries are - does anyone know any
pain killing alternatives? Does anyone have any experience of anything
similar? How do people cope with this sort of thing? and Does anyone
have any suggestions on next steps I need to take to get this sorted?
Been 14 months since first cyst op and 4 months since laproscopy, I'm
in pain everyday and just had enough really as it is impacting on every
aspect of my life!

Many thanks!

Jenn

2006-01-27, 11:29 am

"Wendell" <wendishepherd@hotmail.com> wrote in message
news:1138028810.220885.91330@g14g2000cwa.googlegroups.com...
> I'm 24, F, single, very active (or used to be), no kids and got a
> history of ovarian cysts - removal of which casused adhesions.
> Following laproscopy for adhesions, was given a diagnosis of Chronic
> Pelvic Inflammatory Disease and simply told to make sure I have
> children asap (not an option) and to try alternative therapies for the
> pain. Saw another OBGYN a couple of weeks later for post-surgery
> check-up who told me that he thought I had endo (although pain not
> related to menstral cycle - just constant). Also had tests for cancer
> and been on courses of antibiotics to remove cause if Chronic PID (has
> made no difference)... They are not prepared to do a hystorectomy and
> nor will they seem willing to look into the problem any more.
>
> I have been having acupuncture through my GP and have started yoga and
> light exercise. Pain relief wise I am taking Meptid, Amytriplyine
> (40mg/day) and Maxalon for sickness from Meptid - reached this
> combination after lots of trial and error but now pain-killers don't
> seem to be working anymore, GP reluctant to put me on anything else
> stronger as would have to be more narcotic based, and some days even
> light exercise too much. So, my queries are - does anyone know any
> pain killing alternatives? Does anyone have any experience of anything
> similar? How do people cope with this sort of thing? and Does anyone
> have any suggestions on next steps I need to take to get this sorted?
> Been 14 months since first cyst op and 4 months since laproscopy, I'm
> in pain everyday and just had enough really as it is impacting on every
> aspect of my life!
>
> Many thanks!

>

It sounds to me like you need to find someone knowledgeable in fibro and
endometriosis. Endometriosis is only helped by removal, what bothers me is
your doctor said "I think you might have endo". He should know, it should
have been found in the surgery. He might not be qualified enough to know
what it is, therefore not qualified to remove it. Endometriosis is not
always specifically irritated by menstruation, you can have endo pain
anytime. It's agony, I know because I had some removed a couple of years
ago. I also have PCOS, so I agree with the other poster on looking into
that. But it sounds to me like you need a better qualified doctor who is
willing to help you find out what is going on. Also, you might want to visit
the ERC site which is the Endometriosis Research Center. There is a Yahoo
group with thousands of women who support each other, you could post there
and see what everyone says. The link is:
http://health.groups.yahoo.com/group/erc
Also, not to be negative but I have not known anything other than a narcotic
that works for the bad pain. The exercise and yoga you are doing, along
with the acupuncture sound great. Please feel free to e-mail me as well:
jenn-h@houston.rr.com

Jenn

Zombywoof

2006-01-27, 11:29 am

On 23 Jan 2006 07:06:50 -0800, "Wendell" <wendishepherd@hotmail.com>
wrote:

>I'm 24, F, single, very active (or used to be), no kids and got a
>history of ovarian cysts - removal of which casused adhesions.
>Following laproscopy for adhesions, was given a diagnosis of Chronic
>Pelvic Inflammatory Disease and simply told to make sure I have
>children asap (not an option) and to try alternative therapies for the
>pain. Saw another OBGYN a couple of weeks later for post-surgery
>check-up who told me that he thought I had endo (although pain not
>related to menstral cycle - just constant). Also had tests for cancer
>and been on courses of antibiotics to remove cause if Chronic PID (has
>made no difference)... They are not prepared to do a hystorectomy and
>nor will they seem willing to look into the problem any more.
>
>I have been having acupuncture through my GP and have started yoga and
>light exercise. Pain relief wise I am taking Meptid, Amytriplyine
>(40mg/day) and Maxalon for sickness from Meptid - reached this
>combination after lots of trial and error but now pain-killers don't
>seem to be working anymore, GP reluctant to put me on anything else
>stronger as would have to be more narcotic based, and some days even
>light exercise too much. So, my queries are - does anyone know any
>pain killing alternatives? Does anyone have any experience of anything
>similar? How do people cope with this sort of thing? and Does anyone
>have any suggestions on next steps I need to take to get this sorted?
>Been 14 months since first cyst op and 4 months since laproscopy, I'm
>in pain everyday and just had enough really as it is impacting on every
>aspect of my life!
>
>Many thanks!

>
One of the interesting things about Meptid is that the second most
frequently occurring side-effect is Abdominal pain.

Personally I would go see another Doc for a second/third opinion.
Whenever your Dr isn't making progress in your condition you should
always seek another opinion. Perhaps seeing a Pain Management
Specialist would be in order. Ask your GP for a referral.
--

December 9, 2005 (CNN) While interviewing an anonymous
US Special Forces soldier, a Reuters News agent asked
the soldier what he felt when sniping members of Al Quaeda
in Afghanistan.

The soldier shrugged and replied, "Recoil." (Possible Urban Legend)

Wendell

2006-01-30, 11:24 am

Thank you so much to everyone for your advice & web links. I'm going
back to see my GP on Weds so hopefully I'll get some further advice.
Gonna make sure I get referred over to another OBGYN who knows what
they are doing!