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| Pamela Venus 2006-07-08, 8:21 am |
| Hey everyone. I just wanted to check in and connect with others who understand.
After struggling with upper respiratory stuff for the last 3 months, I am finally feeling better and able to do some things I enjoy--lay out in the sun (which I love!!!, go to a movie etc.). I've been off work for the last week from my most stressful j
ob (I work two part time jobs) and seeing how much better I feel with the absence of that stress has been very illuminating. I've started looking for another job which feels exciting and stressful in itself--I don't like change and there is the familiari
ty and the senority/benefits that come with being in one job for 9 years. The stress is so overwhelming there though that I know that I need to really look at other options and learn to detach more and manage the stress better until I find a better fit.
It's been really hard for me with friends recently--I have felt an absence of support and understanding while I have been sick and unable to do things and be more available. I know that others can't understand this illness because they haven't experien
ced it but I have felt that when I try to share about what it has been like for me--with one friend there has been just silence which feels like a lack of caring and sometimes feels like judgement. With a couple other friends, I have felt an absence of s
upport--that there is a lack of mutuality (not totally--but enough to feel a real imbalance) in the relationships--that they want and expect a lot of support from me but when I have been in need and really have not had the energy to give--there has been a
very noticable gap in our communication and realtionships. How do others cope with this? It's been really hurtful and disappointing to me--some of these are very long term friendships.
This illness can be so isolating.
I know that I have not been very available myself the last couple months due to being so ill. I feel hurt and angry and resentful and have the energy and awareness now that I need to share my feelings directly with these friends. Otherwise, I continue
to feel resentful and drained by those relationships. It has been such a theme with my personal relationships recently that I am left wondering what the lesson is for me--what I need to learn from this and/or do differently in my life.
My husband has been very supportive and is my best friend and I'm so grateful for that--but he has also been going through some major stressors himself and I know that I need more of a social support structure in my life than just him (or any one person
).
On a positive note, I have tried something that has really helped me--it's not a cure but it has helped a lot with reducing/eliminating my muscle pain (for me, muscle pain is not my primary/prominant symptom but it had been more present the last several
months) and also has been a great stress reducer and I think has started to help boost my immunity. It's called a Migun massage bed. It combines massage, chiropractic, accupressure and moxibuxtion (infrared heat therapy). A friend of mine who is a mas
sotherapist and has Fibromyalgia got one for her use and to use with her massotherapy practice. After trying it for 4 sessions--I was so impressed with how much it helped detoxify my system, made me feel better etc. that I used the money I was saving for
a Caribbean vacation to purchase one so I can use it daily. I use it every morning and evening and it seems to really be helping me.
Again--it's not a cure--I still have CFS but it has helped me feel better and reduced some of my symptoms. I still have difficult days and my energy is still limited--but at least I'm able to function socially again. It's also very relaxing. Most cit
ies have demonstration centers where you can try/use the Migun for free--most for an unlimited amount of time.
It's something that's pretty new to the east coast--I had never heard of them before. It was developed in Korea and is used in the hospitals there and has gotten FDA approval here as a physical therapy device. I was able to get my doctor to write a pr
escription for mine so that I can write it off of my taxes next year. Anyone that is interested can check it out at Migunworld.com and the research on it's use is available at migunminnesota.com/Clinical_Research.htm. I am not selling the Migun--it's ju
st something that I have found to be helpful and wanted to share my experience with others. I've been using it for about 2 months--1x a week for the first month and then daily for the past month (since I bought one). I'm hoping that over time it will co
ntinue to boost my immune system and help support my health. I'll share my experience with it after longer use if people are interested. My husband (who had Hepatitis C) has been using it once a day as well and it has
been helping him alot with his physical energy. A word of caution--when I started using the Migun daily--I went through a really intense detox process for about a week and felt awful--but that cleared and now the detoxification is much more gentle.
I have also been heartened and saddened/scared by the recent research developments for CFS that came at the cost of someone losing her life. I wasn't aware that CFS could be life threatening/cause death--that really shook me up. I need to do more read
ing on ME and how it is defined--and how you know if you have life threatening symptoms. I've had periods where I felt so terrible that I "felt" like Imy life was at peril but I always thought that it was just a "feeling"--that it was just because at tha
t point I felt so physically miserable. Learning that CFS/ME has caused the death of others really shocked and shook me up.
Well, that's my scoop. I hope others are hanging in there and able to enjoy the sun. This is my favorite time of year. Lying out in the sun by the lake is one of my favorite things in the world--I absolutely love it. It feels very healing for me.
BTW: Bobbie mentioned a while back about a medication that people with CFS shouldn't take--is there a list of others that shouldn't be used/taken? If so, could someone post the list or a link to the info. Thanks,
Love & blessings,
Pamela
| |
|
| Hi Pamela and Wendi,
I just wanted to add that I SO understand the lack of understanding from friends and family and I can so relate to what the two of you said. My husband is also the most understanding. I have my best friend who tries to understand and be supportive, but sh
e really doesn't get it. I feel blessed that I have my husband and friend that don't make me feel so neurotic. My Mother (who has always been there for me my entire life..also doesn't get it..she just wishes I would get better and doesn't care to here tha
t I'm having a bad day). I think that is the norm..to have people treat us like this. So..like you guys..I just have isolated myself and I just put on a happy face and try to never mention anything about it. I have learned that it is just easier.
I wanted to add that I have never been able to handle being massaged since I first got sick with CFS 16 years ago! It makes my muscles immediately feel sensitive and hurt. I cannot tolerate even a light massage from my husband. So I thought how odd that P
amela was better with massage! I have tryed..and I WISH it helped me but it only makes me worse! Weird..huh? So I was wondering if anyone else has had this experience?
Also..after being a sun-worshiper all my life..and living in California..since CFS began I cannot handle being out in the sun for very long. It actually makes me feel sick and like I might faint. I have had a few close calls from being out in the heat sev
eral times now..and I barely made it back home only to crash in bed..sicker than ever. So..odd how different what we can all tolerate..for some of us..it feels healing..others (like me)..these things make me worse. Oh..and I actually prefer to go out in t
he evening or even later at night when it is cooler..to do my errands. My friends call me Vampira
because I am getting to where I prefer doing things at night! lol!
I was very sick with CFS the first 5 years or so..but I am not as sick with fevers, swollen lympe nodes, malice is better, etc. However I still have pain and fatigue most all of the time that I just deal with. I guess it is fibromyalgia pain. Pacing mysel
f makes it tolerable..I try not to take pain meds. Anxiety is still always there too. I've felt better since taking an anti-depressant.
Oh..and I tolerate antibiotics better than most people (especially ones with CFS) it seems. Doxycycline makes me feel better..anytime I take it! It helps my breathing problems. I take Doxycycline off and on for a skin condition called Rosacea..and when I
do take it for that..my sinus and respiratory symptoms always improve. So..another difference between us. I just thought I'd share this with you guys. :o)
Shea
CFS/FM since 1990
Date: Sat, 8 Jul 2006 04:45:34 -0700
From: Pamela Venus <pamelavmail-cfs@YAHOO.COM>
Subject: just connecting
Hey everyone. I just wanted to check in and connect with others who understand.
After struggling with upper respiratory stuff for the last 3 months, I am finally feeling better and able to do some things I enjoy--lay out in the sun (which I love!!!, go to a movie etc.). I've been off work for the last week from my most stressful j
ob (I work two part time jobs) and seeing how much better I feel with the absence of that stress has been very illuminating. I've started looking for another job which feels exciting and stressful in itself--I don't like change and there is the familiari
ty and the senority/benefits that come with being in one job for 9 years. The stress is so overwhelming there though that I know that I need to really look at other options and learn to detach more and manage the stress better until I find a better fit.
It's been really hard for me with friends recently--I have felt an absence of support and understanding while I have been sick and unable to do things and be more available. I know that others can't understand this illness because they haven't experien
ced it but I have felt that when I try to share about what it has been like for me--with one friend there has been just silence which feels like a lack of caring and sometimes feels like judgement. With a couple other friends, I have felt an absence of s
upport--that there is a lack of mutuality (not totally--but enough to feel a real imbalance) in the relationships--that they want and expect a lot of support from me but when I have been in need and really have not had the energy to give--there has been a
very noticable gap in our communication and realtionships. How do others cope with this? It's been really hurtful and disappointing to me--some of these are very long term friendships.
This illness can be so isolating.
I know that I have not been very available myself the last couple months due to being so ill. I feel hurt and angry and resentful and have the energy and awareness now that I need to share my feelings directly with these friends. Otherwise, I continue
to feel resentful and drained by those relationships. It has been such a theme with my personal relationships recently that I am left wondering what the lesson is for me--what I need to learn from this and/or do differently in my life.
My husband has been very supportive and is my best friend and I'm so grateful for that--but he has also been going through some major stressors himself and I know that I need more of a social support structure in my life than just him (or any one person
).
On a positive note, I have tried something that has really helped me--it's not a cure but it has helped a lot with reducing/eliminating my muscle pain (for me, muscle pain is not my primary/prominant symptom but it had been more present the last several
months) and also has been a great stress reducer and I think has started to help boost my immunity. It's called a Migun massage bed. It combines massage, chiropractic, accupressure and moxibuxtion (infrared heat therapy). A friend of mine who is a mas
sotherapist and has Fibromyalgia got one for her use and to use with her massotherapy practice. After trying it for 4 sessions--I was so impressed with how much it helped detoxify my system, made me feel better etc. that I used the money I was saving for
a Caribbean vacation to purchase one so I can use it daily. I use it every morning and evening and it seems to really be helping me.
Again--it's not a cure--I still have CFS but it has helped me feel better and reduced some of my symptoms. I still have difficult days and my energy is still limited--but at least I'm able to function socially again. It's also very relaxing. Most cit
ies have demonstration centers where you can try/use the Migun for free--most for an unlimited amount of time.
It's something that's pretty new to the east coast--I had never heard of them before. It was developed in Korea and is used in the hospitals there and has gotten FDA approval here as a physical therapy device. I was able to get my doctor to write a pr
escription for mine so that I can write it off of my taxes next year. Anyone that is interested can check it out at Migunworld.com and the research on it's use is available at migunminnesota.com/Clinical_Research.htm. I am not selling the Migun--it's ju
st something that I have found to be helpful and wanted to share my experience with others. I've been using it for about 2 months--1x a week for the first month and then daily for the past month (since I bought one). I'm hoping that over time it will co
ntinue to boost my immune system and help support my health. I'll share my experience with it after longer use if people are interested. My husband (who had Hepatitis C) has been using it once a day as well and it has
been helping him alot with his physical energy. A word of caution--when I started using the Migun daily--I went through a really intense detox process for about a week and felt awful--but that cleared and now the detoxification is much more gentle.
I have also been heartened and saddened/scared by the recent research developments for CFS that came at the cost of someone losing her life. I wasn't aware that CFS could be life threatening/cause death--that really shook me up. I need to do more read
ing on ME and how it is defined--and how you know if you have life threatening symptoms. I've had periods where I felt so terrible that I "felt" like Imy life was at peril but I always thought that it was just a "feeling"--that it was just because at tha
t point I felt so physically miserable. Learning that CFS/ME has caused the death of others really shocked and shook me up.
Well, that's my scoop. I hope others are hanging in there and able to enjoy the sun. This is my favorite time of year. Lying out in the sun by the lake is one of my favorite things in the world--I absolutely love it. It feels very healing for me.
BTW: Bobbie mentioned a while back about a medication that people with CFS shouldn't take--is there a list of others that shouldn't be used/taken? If so, could someone post the list or a link to the info. Thanks,
Love & blessings,
Pamela
and
------------------------------
Date: Sat, 8 Jul 2006 08:12:58 -0700
From: Wendi Carrillo <tres_gatos87801@YAHOO.COM>
Subject: Supportive Friends
Morning, Pamela,
I'm imagining that I'm writing this from a window overlooking your lake house! How nice...
Pamela, you are definitely NOT alone in the friend issue arena. I'm counting my close friends and they are two. My husband and his best friend and yet the friend still has no idea how sick I really am. I put on my "all's good" face when he's around. The
only excuse I have now that people can half way understand is when I use my Hashimoto's thyroid disease to explain to them why I quit my exercise class, or why I can't go out for drinks, or go out at all anymore. It's the ONLY thing I have diagnosable th
at people understand.
I'm a shell of my previous CFS self, just in the last year. My Hashimoto's has taken it all out of me. Being hypothyroid is like CFS mulitiplied by 10. Many people believe I had Hashimoto's all along, and if I get it under control everything else will g
o away. I did NOT wake up with Hashimoto's. I woke up with a flu that changed my entire life as I knew it 15 yrs ago. Hashimoto's is just a result. I look at all my supplements and naturopath bills and wonder where the heck the guy is out there who can fi
x me with gene therapy instead of ALL this other stuff. We've all been struggling this long with no cure. Heck, people with HIV almost live a better existence than some of us. Not that I'd trade this disease for HIV, but dear god, can we not get some legi
timate help?
Pamela, I don't know how to tell you to deal with the lack of understanding and care from your friends. My own mother, who is one of the most understanding people I know, still she does not get it. She thinks it was the emotional trauma of being an only
child with a young mom who wasn't around much. Again, another person who thinks it's all in my head because, "you don't look sick". Thank god for the goiter or they'd have put me in the loony-bin by now! LOL!
For help through the hard times I look to my spiritual side. Yeah, and I get mad too once in a while. You know, the whole why me bit. And I too, put too much pressure on my husband. Thank God for him. But honestly, he's the only reason I haven't done so
mething to hurt myself. It would devastate him and I couldn't imagine leaving him with those emotions. But it gets that hard sometimes.
Hang in there. Wish we were near each other. At least we could lay out together, watch movies and dish about the world together from our safe zones without any outside judgement. What fun that would be!
Take care.. We're always here if you need to chat 
-Wendi
| |
| Donna Parker 2006-07-10, 2:22 am |
| Hi!
Regarding the Rosecea, why not use a topical instead of an oral medicine? I
do.
Question: I am getting ready to go off ssri's after 10 years. They have been
very helpful but I think its time to "go it alone". I WILL do it bit by bit
and with the doctors advice. Has anyone else gone off ssri's
(antidepressants) and done it successfully?
Thanks for reading and sharing!
Donna
-----Original Message-----
From: Chronic Fatigue Syndrome discussion CFIDS/ME
[mailto:CFS-L@LISTSERV.ICORS.ORG] On Behalf Of Shea
Sent: Sunday, July 09, 2006 11:07 AM
To: CFS-L@LISTSERV.ICORS.ORG
Subject: Re: just connecting
Hi Pamela and Wendi,
I just wanted to add that I SO understand the lack of understanding from
friends and family and I can so relate to what the two of you said. My
husband is also the most understanding. I have my best friend who tries to
understand and be supportive, but she really doesn't get it. I feel blessed
that I have my husband and friend that don't make me feel so neurotic. My
Mother (who has always been there for me my entire life..also doesn't get
it..she just wishes I would get better and doesn't care to here that I'm
having a bad day). I think that is the norm..to have people treat us like
this. So..like you guys..I just have isolated myself and I just put on a
happy face and try to never mention anything about it. I have learned that
it is just easier.
I wanted to add that I have never been able to handle being massaged since I
first got sick with CFS 16 years ago! It makes my muscles immediately feel
sensitive and hurt. I cannot tolerate even a light massage from my husband.
So I thought how odd that Pamela was better with massage! I have tryed..and
I WISH it helped me but it only makes me worse! Weird..huh? So I was
wondering if anyone else has had this experience?
Also..after being a sun-worshiper all my life..and living in
California..since CFS began I cannot handle being out in the sun for very
long. It actually makes me feel sick and like I might faint. I have had a
few close calls from being out in the heat several times now..and I barely
made it back home only to crash in bed..sicker than ever. So..odd how
different what we can all tolerate..for some of us..it feels healing..others
(like me)..these things make me worse. Oh..and I actually prefer to go out
in the evening or even later at night when it is cooler..to do my errands.
My friends call me Vampira
because I am getting to where I prefer doing things at night! lol!
I was very sick with CFS the first 5 years or so..but I am not as sick with
fevers, swollen lympe nodes, malice is better, etc. However I still have
pain and fatigue most all of the time that I just deal with. I guess it is
fibromyalgia pain. Pacing myself makes it tolerable..I try not to take pain
meds. Anxiety is still always there too. I've felt better since taking an
anti-depressant.
Oh..and I tolerate antibiotics better than most people (especially ones with
CFS) it seems. Doxycycline makes me feel better..anytime I take it! It helps
my breathing problems. I take Doxycycline off and on for a skin condition
called Rosacea..and when I do take it for that..my sinus and respiratory
symptoms always improve. So..another difference between us. I just thought
I'd share this with you guys. :o)
Shea
CFS/FM since 1990
Date: Sat, 8 Jul 2006 04:45:34 -0700
From: Pamela Venus <pamelavmail-cfs@YAHOO.COM>
Subject: just connecting
Hey everyone. I just wanted to check in and connect with others who
understand.
After struggling with upper respiratory stuff for the last 3 months, I am
finally feeling better and able to do some things I enjoy--lay out in the
sun (which I love!!!, go to a movie etc.). I've been off work for the last
week from my most stressful job (I work two part time jobs) and seeing how
much better I feel with the absence of that stress has been very
illuminating. I've started looking for another job which feels exciting and
stressful in itself--I don't like change and there is the familiarity and
the senority/benefits that come with being in one job for 9 years. The
stress is so overwhelming there though that I know that I need to really
look at other options and learn to detach more and manage the stress better
until I find a better fit.
It's been really hard for me with friends recently--I have felt an absence
of support and understanding while I have been sick and unable to do things
and be more available. I know that others can't understand this illness
because they haven't experienced it but I have felt that when I try to share
about what it has been like for me--with one friend there has been just
silence which feels like a lack of caring and sometimes feels like
judgement. With a couple other friends, I have felt an absence of
support--that there is a lack of mutuality (not totally--but enough to feel
a real imbalance) in the relationships--that they want and expect a lot of
support from me but when I have been in need and really have not had the
energy to give--there has been a very noticable gap in our communication and
realtionships. How do others cope with this? It's been really hurtful and
disappointing to me--some of these are very long term friendships.
This illness can be so isolating.
I know that I have not been very available myself the last couple months
due to being so ill. I feel hurt and angry and resentful and have the
energy and awareness now that I need to share my feelings directly with
these friends. Otherwise, I continue to feel resentful and drained by those
relationships. It has been such a theme with my personal relationships
recently that I am left wondering what the lesson is for me--what I need to
learn from this and/or do differently in my life.
My husband has been very supportive and is my best friend and I'm so
grateful for that--but he has also been going through some major stressors
himself and I know that I need more of a social support structure in my life
than just him (or any one person).
On a positive note, I have tried something that has really helped me--it's
not a cure but it has helped a lot with reducing/eliminating my muscle pain
(for me, muscle pain is not my primary/prominant symptom but it had been
more present the last several months) and also has been a great stress
reducer and I think has started to help boost my immunity. It's called a
Migun massage bed. It combines massage, chiropractic, accupressure and
moxibuxtion (infrared heat therapy). A friend of mine who is a
massotherapist and has Fibromyalgia got one for her use and to use with her
massotherapy practice. After trying it for 4 sessions--I was so impressed
with how much it helped detoxify my system, made me feel better etc. that I
used the money I was saving for a Caribbean vacation to purchase one so I
can use it daily. I use it every morning and evening and it seems to really
be helping me.
Again--it's not a cure--I still have CFS but it has helped me feel better
and reduced some of my symptoms. I still have difficult days and my energy
is still limited--but at least I'm able to function socially again. It's
also very relaxing. Most cities have demonstration centers where you can
try/use the Migun for free--most for an unlimited amount of time.
It's something that's pretty new to the east coast--I had never heard of
them before. It was developed in Korea and is used in the hospitals there
and has gotten FDA approval here as a physical therapy device. I was able
to get my doctor to write a prescription for mine so that I can write it off
of my taxes next year. Anyone that is interested can check it out at
Migunworld.com and the research on it's use is available at
migunminnesota.com/Clinical_Research.htm. I am not selling the Migun--it's
just something that I have found to be helpful and wanted to share my
experience with others. I've been using it for about 2 months--1x a week
for the first month and then daily for the past month (since I bought one).
I'm hoping that over time it will continue to boost my immune system and
help support my health. I'll share my experience with it after longer use
if people are interested. My husband (who had Hepatitis C) has been using
it once a day as well and it has
been helping him alot with his physical energy. A word of caution--when I
started using the Migun daily--I went through a really intense detox process
for about a week and felt awful--but that cleared and now the detoxification
is much more gentle.
I have also been heartened and saddened/scared by the recent research
developments for CFS that came at the cost of someone losing her life. I
wasn't aware that CFS could be life threatening/cause death--that really
shook me up. I need to do more reading on ME and how it is defined--and how
you know if you have life threatening symptoms. I've had periods where I
felt so terrible that I "felt" like Imy life was at peril but I always
thought that it was just a "feeling"--that it was just because at that point
I felt so physically miserable. Learning that CFS/ME has caused the death
of others really shocked and shook me up.
Well, that's my scoop. I hope others are hanging in there and able to
enjoy the sun. This is my favorite time of year. Lying out in the sun by
the lake is one of my favorite things in the world--I absolutely love it.
It feels very healing for me.
BTW: Bobbie mentioned a while back about a medication that people with
CFS shouldn't take--is there a list of others that shouldn't be used/taken?
If so, could someone post the list or a link to the info. Thanks,
Love & blessings,
Pamela
and
------------------------------
Date: Sat, 8 Jul 2006 08:12:58 -0700
From: Wendi Carrillo <tres_gatos87801@YAHOO.COM>
Subject: Supportive Friends
Morning, Pamela,
I'm imagining that I'm writing this from a window overlooking your lake
house! How nice...
Pamela, you are definitely NOT alone in the friend issue arena. I'm
counting my close friends and they are two. My husband and his best friend
and yet the friend still has no idea how sick I really am. I put on my
"all's good" face when he's around. The only excuse I have now that people
can half way understand is when I use my Hashimoto's thyroid disease to
explain to them why I quit my exercise class, or why I can't go out for
drinks, or go out at all anymore. It's the ONLY thing I have diagnosable
that people understand.
I'm a shell of my previous CFS self, just in the last year. My Hashimoto's
has taken it all out of me. Being hypothyroid is like CFS mulitiplied by 10.
Many people believe I had Hashimoto's all along, and if I get it under
control everything else will go away. I did NOT wake up with Hashimoto's. I
woke up with a flu that changed my entire life as I knew it 15 yrs ago.
Hashimoto's is just a result. I look at all my supplements and naturopath
bills and wonder where the heck the guy is out there who can fix me with
gene therapy instead of ALL this other stuff. We've all been struggling this
long with no cure. Heck, people with HIV almost live a better existence than
some of us. Not that I'd trade this disease for HIV, but dear god, can we
not get some legitimate help?
Pamela, I don't know how to tell you to deal with the lack of
understanding and care from your friends. My own mother, who is one of the
most understanding people I know, still she does not get it. She thinks it
was the emotional trauma of being an only child with a young mom who wasn't
around much. Again, another person who thinks it's all in my head because,
"you don't look sick". Thank god for the goiter or they'd have put me in the
loony-bin by now! LOL!
For help through the hard times I look to my spiritual side. Yeah, and I
get mad too once in a while. You know, the whole why me bit. And I too, put
too much pressure on my husband. Thank God for him. But honestly, he's the
only reason I haven't done something to hurt myself. It would devastate him
and I couldn't imagine leaving him with those emotions. But it gets that
hard sometimes.
Hang in there. Wish we were near each other. At least we could lay out
together, watch movies and dish about the world together from our safe zones
without any outside judgement. What fun that would be!
Take care.. We're always here if you need to chat
-Wendi
--
No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.1.394 / Virus Database: 268.9.10/383 - Release Date: 7/7/2006
| |
| Vickijo0403@AOL.COM 2006-07-10, 2:22 am |
| YES, I went off Lexapro and feel better without it.
OK what is the topical RX for help with Rosecea that you use?
I did try one several years ago, but did not give me good results.
Thanks, Vicki jo
| |
|
| Hi Donna,
I DO use a topical antibiotic called Metrogel. I have also tryed Metrocream.
They are the same just in gel or cream form and are prescription. I still use
it every night, but even when I used it twice a day, it was not enough and
there are times that I need to take an oral antibiotic. It's the only thing that
keeps it under control. I think I also have another form of adult acne, since
CFS, so it keeps that under control also, and like I said (for me) the antibiotics
help with some of my other CFS symptoms, so it works for me.
About going off the SSRI's. I took Prozac for about 5 years, and decided to
try going off it. I was afraid of side effects, so it took me several months of
slowly going off it by lowering the dose ever so slowly..then after I got to
the lowest dose by just emptying out the capsule to a small amount..I went
every other day..and then just stopped it. By doing it slowly..I had no side
effects. I did okay for about 3 years taking nothing but an occasional Xanax.
However...I suddenly started having panic attacks again..especially when
trying to drive, and my anxiety was so bad that I had to go back on it. I'm
still taking it, and it does control my anxiety. So I feel that I am functioning
at a more tolerable level by taking it. Also I think I sleep better since going
back on it. I just take a normal dose of 20mg. Good Luck on going off of them.
Keep us updated on how it's working for you. :o)
Shea
Date: Sun, 9 Jul 2006 20:00:35 -0700
From: Donna Parker <donna@CREATIVEFORMSONLINE.COM>
Subject: Re: just connecting
Hi!
Regarding the Rosecea, why not use a topical instead of an oral medicine? I
do.
Question: I am getting ready to go off ssri's after 10 years. They have been
very helpful but I think its time to "go it alone". I WILL do it bit by bit
and with the doctors advice. Has anyone else gone off ssri's
(antidepressants) and done it successfully?
Thanks for reading and sharing!
Donna
| |
| Vickijo0403@AOL.COM 2006-07-10, 4:22 pm |
| I too, have, anxiety, and I do take a Melatonin at night to help get a
deeper sleep.
What else is good, for anxiety ????? Financial stress, keeps me "on edge"
for sure.....
Thanks, Vicki Jo
| |
| Donna Parker 2006-07-10, 4:22 pm |
| Thank you!!
Donna
-----Original Message-----
From: Chronic Fatigue Syndrome discussion CFIDS/ME
[mailto:CFS-L@LISTSERV.ICORS.ORG] On Behalf Of Shea
Sent: Monday, July 10, 2006 4:14 AM
To: CFS-L@LISTSERV.ICORS.ORG
Subject: Re: just connecting
Hi Donna,
I DO use a topical antibiotic called Metrogel. I have also tryed Metrocream.
They are the same just in gel or cream form and are prescription. I still
use
it every night, but even when I used it twice a day, it was not enough and
there are times that I need to take an oral antibiotic. It's the only thing
that
keeps it under control. I think I also have another form of adult acne,
since
CFS, so it keeps that under control also, and like I said (for me) the
antibiotics
help with some of my other CFS symptoms, so it works for me.
About going off the SSRI's. I took Prozac for about 5 years, and decided to
try going off it. I was afraid of side effects, so it took me several months
of
slowly going off it by lowering the dose ever so slowly..then after I got to
the lowest dose by just emptying out the capsule to a small amount..I went
every other day..and then just stopped it. By doing it slowly..I had no side
effects. I did okay for about 3 years taking nothing but an occasional
Xanax.
However...I suddenly started having panic attacks again..especially when
trying to drive, and my anxiety was so bad that I had to go back on it. I'm
still taking it, and it does control my anxiety. So I feel that I am
functioning
at a more tolerable level by taking it. Also I think I sleep better since
going
back on it. I just take a normal dose of 20mg. Good Luck on going off of
them.
Keep us updated on how it's working for you. :o)
Shea
Date: Sun, 9 Jul 2006 20:00:35 -0700
From: Donna Parker <donna@CREATIVEFORMSONLINE.COM>
Subject: Re: just connecting
Hi!
Regarding the Rosecea, why not use a topical instead of an oral medicine? I
do.
Question: I am getting ready to go off ssri's after 10 years. They have been
very helpful but I think its time to "go it alone". I WILL do it bit by bit
and with the doctors advice. Has anyone else gone off ssri's
(antidepressants) and done it successfully?
Thanks for reading and sharing!
Donna
--
No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.1.394 / Virus Database: 268.9.10/383 - Release Date: 7/7/2006
| |
| Donna Parker 2006-07-10, 4:22 pm |
| Metrogel
-----Original Message-----
From: Chronic Fatigue Syndrome discussion CFIDS/ME
[mailto:CFS-L@LISTSERV.ICORS.ORG] On Behalf Of Vickijo0403@AOL.COM
Sent: Sunday, July 09, 2006 9:08 PM
To: CFS-L@LISTSERV.ICORS.ORG
Subject: Re: just connecting
YES, I went off Lexapro and feel better without it.
OK what is the topical RX for help with Rosecea that you use?
I did try one several years ago, but did not give me good results.
Thanks, Vicki jo
--
No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.1.394 / Virus Database: 268.9.10/383 - Release Date: 7/7/2006
| |
| Wendi Carrillo 2006-07-10, 4:22 pm |
| Valerian root, although highly stinky, is a MAJOR relaxant!
Good stuff. I've found St. John's Wort to be an overall relaxant. I take it everyday as it is my anti-viral tincture.
And if nothing else.. Meditate I suppose. Stay Well.
Vickijo0403@AOL.COM wrote:
I too, have, anxiety, and I do take a Melatonin at night to help get a
deeper sleep.
What else is good, for anxiety ????? Financial stress, keeps me "on edge"
for sure.....
Thanks, Vicki Jo
---------------------------------
Yahoo! Music Unlimited - Access over 1 million songs.Try it free.
| |
| Wendi Carrillo 2006-07-10, 4:22 pm |
| Shea,
My anxiety was mainly due to my thyroid disorder that makes me hypothyroid. When I am not hypo I much more relaxed and feeling no anxiety.
Have you had a full thyroid panel done? Problem for me was that my docs always said my TSH was normal, which was normal years ago, but now the new range is much lower, PLUS I had antibodies which they never tested me for even though I have a pretty mode
rate size goiter. All I can say is thank god for my NP that thought to check my thyroid. I no longer need Zanax and of course a diet change was needed, but I'm on a better path. Of course I still have anxiety, who doesn't, but I can handle it now and don'
t need the drugs to suppress it.
Make sure your thyroid is in check, but you MUST have the full-panel or you won't know for sure. Most doctors won't do a full-panel unless you ask.
Just a few thoughts! Stay well.
Shea <shadow@QNET.COM> wrote:
Hi Donna,
I DO use a topical antibiotic called Metrogel. I have also tryed Metrocream.
They are the same just in gel or cream form and are prescription. I still use
it every night, but even when I used it twice a day, it was not enough and
there are times that I need to take an oral antibiotic. It's the only thing that
keeps it under control. I think I also have another form of adult acne, since
CFS, so it keeps that under control also, and like I said (for me) the antibiotics
help with some of my other CFS symptoms, so it works for me.
About going off the SSRI's. I took Prozac for about 5 years, and decided to
try going off it. I was afraid of side effects, so it took me several months of
slowly going off it by lowering the dose ever so slowly..then after I got to
the lowest dose by just emptying out the capsule to a small amount..I went
every other day..and then just stopped it. By doing it slowly..I had no side
effects. I did okay for about 3 years taking nothing but an occasional Xanax.
However...I suddenly started having panic attacks again..especially when
trying to drive, and my anxiety was so bad that I had to go back on it. I'm
still taking it, and it does control my anxiety. So I feel that I am functioning
at a more tolerable level by taking it. Also I think I sleep better since going
back on it. I just take a normal dose of 20mg. Good Luck on going off of them.
Keep us updated on how it's working for you. :o)
Shea
Date: Sun, 9 Jul 2006 20:00:35 -0700
From: Donna Parker
Subject: Re: just connecting
Hi!
Regarding the Rosecea, why not use a topical instead of an oral medicine? I
do.
Question: I am getting ready to go off ssri's after 10 years. They have been
very helpful but I think its time to "go it alone". I WILL do it bit by bit
and with the doctors advice. Has anyone else gone off ssri's
(antidepressants) and done it successfully?
Thanks for reading and sharing!
Donna
---------------------------------
Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.
| |
| Joy Hall 2006-07-10, 4:22 pm |
| Although I mostly lurk here, sometimes I find the energy to comment.
I understand those of you who feel isolated. I am only 31 years old and have
had CFS/FM for about 10 years now. So few understand. My husband is very
supportive and understanding, as is his mother. My mother gets grumpy when I
have to cancel on engagements, gets mad when I can not do what she wants me
to, and never ever asks how I am. My step father tells me I am lazy and if I
got out and got a job and exercised I would feel better. My younger siblings
ask me why I am sick all of the time, and my friends stopped inviting me to
do things long ago. I am disabled and can not work, so sometimes I find the
Internet is my only link to the outside world. Thank goodness for groups
like this so we do not have to feel alone and crazy, like society would like
to classify us all.
Joy in SC, USA
| |
| Joy Hall 2006-07-10, 4:22 pm |
| Lavender is relaxing, as is chamomile tea. My doc has me on a low dose of
Klonopin at night for sleep. Some take it for general anxiety.
Joy in SC, USA
----- Original Message -----
From: "Wendi Carrillo" <tres_gatos87801@yahoo.com>
Newsgroups: alt.med.cfs
To: <CFS-L@LISTSERV.ICORS.ORG>
Sent: Monday, July 10, 2006 12:13 PM
Subject: Re: just connecting
> Valerian root, although highly stinky, is a MAJOR relaxant!
>
> Good stuff. I've found St. John's Wort to be an overall relaxant. I take
> it everyday as it is my anti-viral tincture.
>
> And if nothing else.. Meditate I suppose. Stay Well.
>
> Vickijo0403@AOL.COM wrote:
> I too, have, anxiety, and I do take a Melatonin at night to help get a
> deeper sleep.
> What else is good, for anxiety ????? Financial stress, keeps me "on edge"
> for sure.....
> Thanks, Vicki Jo
>
>
>
>
> ---------------------------------
> Yahoo! Music Unlimited - Access over 1 million songs.Try it free.
| |
| Cathy Broxterman 2006-07-11, 2:21 am |
| FYI - I take St. John's Wort and I find that it works just as well as,
if not better than the prescription stuff without anywhere near the
side effects. Just make sure you get the dose right - 300 mg of 3%
hypericin 3 times per day.
Cathy
Donna Parker wrote:
> Hi!
> Regarding the Rosecea, why not use a topical instead of an oral medicine? I
> do.
>
> Question: I am getting ready to go off ssri's after 10 years. They have been
> very helpful but I think its time to "go it alone". I WILL do it bit by bit
> and with the doctors advice. Has anyone else gone off ssri's
> (antidepressants) and done it successfully?
>
> Thanks for reading and sharing!
> Donna
>
> -----Original Message-----
> From: Chronic Fatigue Syndrome discussion CFIDS/ME
> [mailto:CFS-L@LISTSERV.ICORS.ORG] On Behalf Of Shea
> Sent: Sunday, July 09, 2006 11:07 AM
> To: CFS-L@LISTSERV.ICORS.ORG
> Subject: Re: just connecting
>
> Hi Pamela and Wendi,
> I just wanted to add that I SO understand the lack of understanding from
> friends and family and I can so relate to what the two of you said. My
> husband is also the most understanding. I have my best friend who tries to
> understand and be supportive, but she really doesn't get it. I feel blessed
> that I have my husband and friend that don't make me feel so neurotic. My
> Mother (who has always been there for me my entire life..also doesn't get
> it..she just wishes I would get better and doesn't care to here that I'm
> having a bad day). I think that is the norm..to have people treat us like
> this. So..like you guys..I just have isolated myself and I just put on a
> happy face and try to never mention anything about it. I have learned that
> it is just easier.
>
> I wanted to add that I have never been able to handle being massaged since I
> first got sick with CFS 16 years ago! It makes my muscles immediately feel
> sensitive and hurt. I cannot tolerate even a light massage from my husband.
> So I thought how odd that Pamela was better with massage! I have tryed..and
> I WISH it helped me but it only makes me worse! Weird..huh? So I was
> wondering if anyone else has had this experience?
>
> Also..after being a sun-worshiper all my life..and living in
> California..since CFS began I cannot handle being out in the sun for very
> long. It actually makes me feel sick and like I might faint. I have had a
> few close calls from being out in the heat several times now..and I barely
> made it back home only to crash in bed..sicker than ever. So..odd how
> different what we can all tolerate..for some of us..it feels healing..others
> (like me)..these things make me worse. Oh..and I actually prefer to go out
> in the evening or even later at night when it is cooler..to do my errands.
> My friends call me Vampira
> because I am getting to where I prefer doing things at night! lol!
>
> I was very sick with CFS the first 5 years or so..but I am not as sick with
> fevers, swollen lympe nodes, malice is better, etc. However I still have
> pain and fatigue most all of the time that I just deal with. I guess it is
> fibromyalgia pain. Pacing myself makes it tolerable..I try not to take pain
> meds. Anxiety is still always there too. I've felt better since taking an
> anti-depressant.
>
> Oh..and I tolerate antibiotics better than most people (especially ones with
> CFS) it seems. Doxycycline makes me feel better..anytime I take it! It helps
> my breathing problems. I take Doxycycline off and on for a skin condition
> called Rosacea..and when I do take it for that..my sinus and respiratory
> symptoms always improve. So..another difference between us. I just thought
> I'd share this with you guys. :o)
>
> Shea
> CFS/FM since 1990
>
>
> Date: Sat, 8 Jul 2006 04:45:34 -0700
> From: Pamela Venus <pamelavmail-cfs@YAHOO.COM>
> Subject: just connecting
>
> Hey everyone. I just wanted to check in and connect with others who
> understand.
>
> After struggling with upper respiratory stuff for the last 3 months, I am
> finally feeling better and able to do some things I enjoy--lay out in the
> sun (which I love!!!, go to a movie etc.). I've been off work for the last
> week from my most stressful job (I work two part time jobs) and seeing how
> much better I feel with the absence of that stress has been very
> illuminating. I've started looking for another job which feels exciting and
> stressful in itself--I don't like change and there is the familiarity and
> the senority/benefits that come with being in one job for 9 years. The
> stress is so overwhelming there though that I know that I need to really
> look at other options and learn to detach more and manage the stress better
> until I find a better fit.
>
> It's been really hard for me with friends recently--I have felt an absence
> of support and understanding while I have been sick and unable to do things
> and be more available. I know that others can't understand this illness
> because they haven't experienced it but I have felt that when I try to share
> about what it has been like for me--with one friend there has been just
> silence which feels like a lack of caring and sometimes feels like
> judgement. With a couple other friends, I have felt an absence of
> support--that there is a lack of mutuality (not totally--but enough to feel
> a real imbalance) in the relationships--that they want and expect a lot of
> support from me but when I have been in need and really have not had the
> energy to give--there has been a very noticable gap in our communication and
> realtionships. How do others cope with this? It's been really hurtful and
> disappointing to me--some of these are very long term friendships.
> This illness can be so isolating.
>
> I know that I have not been very available myself the last couple months
> due to being so ill. I feel hurt and angry and resentful and have the
> energy and awareness now that I need to share my feelings directly with
> these friends. Otherwise, I continue to feel resentful and drained by those
> relationships. It has been such a theme with my personal relationships
> recently that I am left wondering what the lesson is for me--what I need to
> learn from this and/or do differently in my life.
>
> My husband has been very supportive and is my best friend and I'm so
> grateful for that--but he has also been going through some major stressors
> himself and I know that I need more of a social support structure in my life
> than just him (or any one person).
>
> On a positive note, I have tried something that has really helped me--it's
> not a cure but it has helped a lot with reducing/eliminating my muscle pain
> (for me, muscle pain is not my primary/prominant symptom but it had been
> more present the last several months) and also has been a great stress
> reducer and I think has started to help boost my immunity. It's called a
> Migun massage bed. It combines massage, chiropractic, accupressure and
> moxibuxtion (infrared heat therapy). A friend of mine who is a
> massotherapist and has Fibromyalgia got one for her use and to use with her
> massotherapy practice. After trying it for 4 sessions--I was so impressed
> with how much it helped detoxify my system, made me feel better etc. that I
> used the money I was saving for a Caribbean vacation to purchase one so I
> can use it daily. I use it every morning and evening and it seems to really
> be helping me.
>
> Again--it's not a cure--I still have CFS but it has helped me feel better
> and reduced some of my symptoms. I still have difficult days and my energy
> is still limited--but at least I'm able to function socially again. It's
> also very relaxing. Most cities have demonstration centers where you can
> try/use the Migun for free--most for an unlimited amount of time.
>
> It's something that's pretty new to the east coast--I had never heard of
> them before. It was developed in Korea and is used in the hospitals there
> and has gotten FDA approval here as a physical therapy device. I was able
> to get my doctor to write a prescription for mine so that I can write it off
> of my taxes next year. Anyone that is interested can check it out at
> Migunworld.com and the research on it's use is available at
> migunminnesota.com/Clinical_Research.htm. I am not selling the Migun--it's
> just something that I have found to be helpful and wanted to share my
> experience with others. I've been using it for about 2 months--1x a week
> for the first month and then daily for the past month (since I bought one).
> I'm hoping that over time it will continue to boost my immune system and
> help support my health. I'll share my experience with it after longer use
> if people are interested. My husband (who had Hepatitis C) has been using
> it once a day as well and it has
> been helping him alot with his physical energy. A word of caution--when I
> started using the Migun daily--I went through a really intense detox process
> for about a week and felt awful--but that cleared and now the detoxification
> is much more gentle.
>
> I have also been heartened and saddened/scared by the recent research
> developments for CFS that came at the cost of someone losing her life. I
> wasn't aware that CFS could be life threatening/cause death--that really
> shook me up. I need to do more reading on ME and how it is defined--and how
> you know if you have life threatening symptoms. I've had periods where I
> felt so terrible that I "felt" like Imy life was at peril but I always
> thought that it was just a "feeling"--that it was just because at that point
> I felt so physically miserable. Learning that CFS/ME has caused the death
> of others really shocked and shook me up.
>
> Well, that's my scoop. I hope others are hanging in there and able to
> enjoy the sun. This is my favorite time of year. Lying out in the sun by
> the lake is one of my favorite things in the world--I absolutely love it.
> It feels very healing for me.
>
> BTW: Bobbie mentioned a while back about a medication that people with
> CFS shouldn't take--is there a list of others that shouldn't be used/taken?
> If so, could someone post the list or a link to the info. Thanks,
>
> Love & blessings,
>
> Pamela
>
> and
> ------------------------------
>
> Date: Sat, 8 Jul 2006 08:12:58 -0700
> From: Wendi Carrillo <tres_gatos87801@YAHOO.COM>
> Subject: Supportive Friends
>
> Morning, Pamela,
>
> I'm imagining that I'm writing this from a window overlooking your lake
> house! How nice...
>
> Pamela, you are definitely NOT alone in the friend issue arena. I'm
> counting my close friends and they are two. My husband and his best friend
> and yet the friend still has no idea how sick I really am. I put on my
> "all's good" face when he's around. The only excuse I have now that people
> can half way understand is when I use my Hashimoto's thyroid disease to
> explain to them why I quit my exercise class, or why I can't go out for
> drinks, or go out at all anymore. It's the ONLY thing I have diagnosable
> that people understand.
>
> I'm a shell of my previous CFS self, just in the last year. My Hashimoto's
> has taken it all out of me. Being hypothyroid is like CFS mulitiplied by 10.
> Many people believe I had Hashimoto's all along, and if I get it under
> control everything else will go away. I did NOT wake up with Hashimoto's. I
> woke up with a flu that changed my entire life as I knew it 15 yrs ago.
> Hashimoto's is just a result. I look at all my supplements and naturopath
> bills and wonder where the heck the guy is out there who can fix me with
> gene therapy instead of ALL this other stuff. We've all been struggling this
> long with no cure. Heck, people with HIV almost live a better existence than
> some of us. Not that I'd trade this disease for HIV, but dear god, can we
> not get some legitimate help?
>
> Pamela, I don't know how to tell you to deal with the lack of
> understanding and care from your friends. My own mother, who is one of the
> most understanding people I know, still she does not get it. She thinks it
> was the emotional trauma of being an only child with a young mom who wasn't
> around much. Again, another person who thinks it's all in my head because,
> "you don't look sick". Thank god for the goiter or they'd have put me in the
> loony-bin by now! LOL!
>
> For help through the hard times I look to my spiritual side. Yeah, and I
> get mad too once in a while. You know, the whole why me bit. And I too, put
> too much pressure on my husband. Thank God for him. But honestly, he's the
> only reason I haven't done something to hurt myself. It would devastate him
> and I couldn't imagine leaving him with those emotions. But it gets that
> hard sometimes.
>
> Hang in there. Wish we were near each other. At least we could lay out
> together, watch movies and dish about the world together from our safe zones
> without any outside judgement. What fun that would be!
>
> Take care.. We're always here if you need to chat
>
> -Wendi
>
>
>
>
| |
|
| Hi Joy,
I know Neurontin has really helped alot of people with CFS. I don't mean to throw a negative in about this drug..however I also seem to be super sensitive to drugs and often need to start on them with a very low dose. It's taken me years of trial and erro
r to get to where I can handle just the drugs that I do take..so I under-
stand your sensitivity and fear of side effects.
I have never taken Neurontin, however my husband took it for quite awhile for his nerve pain he has from Tarsal Tunnel Syndrome. His feet and ankles really bother him, and the Neurontin did help some..however he had side effects from it. Sometimes his leg
muscles would cramp up. The Doctor said that was a side effect of the drug in some people. It hasn't happened since he went off it..so that must of been it. He also felt a bit out there sometimes..and I think it effected how he functioned. He feels bette
r since going off it, however he doesn't have CFS, so not sure if "his" reaction counts. lol. Just thought I would share this with you..for what it is worth.
Shea
Date: Mon, 10 Jul 2006 15:29:32 -0400
From: Joy Hall <imperium@CHARTER.NET>
Subject: Re: just connecting
Although I mostly lurk here, sometimes I find the energy to comment.
I understand those of you who feel isolated. I am only 31 years old and have
had CFS/FM for about 10 years now. So few understand. My husband is very
supportive and understanding, as is his mother. My mother gets grumpy when I
have to cancel on engagements, gets mad when I can not do what she wants me
to, and never ever asks how I am. My step father tells me I am lazy and if I
got out and got a job and exercised I would feel better. My younger siblings
ask me why I am sick all of the time, and my friends stopped inviting me to
do things long ago. I am disabled and can not work, so sometimes I find the
Internet is my only link to the outside world. Thank goodness for groups
like this so we do not have to feel alone and crazy, like society would like
to classify us all.
Joy in SC, USA
Date: Mon, 10 Jul 2006 15:32:19 -0400
From: Joy Hall <imperium@CHARTER.NET>
Subject: Neurontin?
I vaguely remember seeing this discussed, but have never been on it before.
I was just given a prescription today and was wondering what any of your
experiences have been. I am ultra sensitive to everything, so I am not
looking forward to any oddball side effects.
If I need to use group search feature, please let me know. I hope I am not
breaking rules by posting without searching. I find that sometimes the
actual search tires me, then I forget what in the world I was looking for.
How sad is that???
Joy in SC, USA
| |
|
| Hi Bobbie,
Thanks for responding to our latest topics here about these
supplements. I agree that diet has become so important for
me. I try to eat a small amount of walnuts daily and I also eat
popcorn some. I eat high fiber and wheat too. I take omega fish
oil capsules. I know it is all so good for inflammation and over-
all health.
I DO remember that one of these supplements was not good
for herpes virus' and I've always thought that some of us are
battling them whether they show up or not on testing. I think
that is why I avoided taking high doses of supplements of these
things. I just try to eat better and get these things from that. I
take a good multi and extra B's and Calcium too. I admit since
I have started eating more fresh food, I really feel better. The
first few years I didn't have the energy to shop and cook for them.
I ate alot more frozen and packaged stuff..and I'm sure it didn't
help me at all.
I so admire you for getting out and walking. I hope to be able to do
that soon. Exercise seems to be my worse enemy though..which is
SO not good for our hearts and bodies as we get older. :o( Okay..I
will stop rambling on here..and go back to lurking for awhile. I've
been on a real roll here..the last few days. lol!
Shea
Date: Mon, 10 Jul 2006 09:56:35 -0700
From: bobbie sellers <bliss@CALIFORNIA.COM>
Subject: Re: Just connecting.
Hi Rita Joy and others, on 07/08/06, you wrote:
RJ> Dear Pamela and all,
RJ> Pamela, you said at the end of your mail, what medications
RJ> should we not take.? I believe that an Antibiotic named
RJ> Metronadazole put me in bed 7 months, as it did others. It
RJ> should not be prescribed for people "with active neurological
RJ> disorders". Check this out on the web? I cannot tolerate
RJ> NSAIDS, they make me retain fluid. When I discovered that the
RJ> docs gave me a never before taken NSAID for pain after the
RJ> first op in November 2003, and I ceased taking it, I lost 9
RJ> lbs., in one week, all fluid. It was noted in my Med Records
RJ> I could not tolerate them, but, as usual, was overlooked.
RJ> I too am feeling slightly better, as the weather has been
RJ> glorious here in the U.K., hardly any rain, and I have had
RJ> long sleeps this week, which makes all the difference to our
RJ> outlook and ability to function.
RJ> I have hardly done anything in the last 2.1/2 years, except
RJ> to shop for food. I have pottered round the house and rested.
RJ> I think my body is adjusting to the drugs I am taking, but I
RJ> am nowhere near as I was pre-November 2003, and the slightest
RJ> exertion - weeding the garden for 5 minutes, made my muscles
RJ> so inflamed, and took 36 hours to subside. This was resting
RJ> every so often.
RJ> Take care, all, and enjoy the Summer. Hi Bobbie, I hope you
RJ> are able to continue your walks round the block, and they are
RJ> not making you overly exhausted.
Not doing too badly if I can get enough rest.
RJ> I am definately going to try the Mangosteen Juice, as it
RJ> probably can do no harm, and may help all kinds of problems I
RJ> have. Wish me luck. Will report on this as and when it is
RJ> received, and go from there.
RJ> Regards Rita U.K.
Other people have mentioned taking Arginine supplments with
some alleviation of symptoms and that means that your illness
is not connected with the virual basis of other folks illness.
Plenty of arginine to be found in nuts and seeds. Whole
wheat and corn including popcorn should have plenty, beans, almonds
and walnuts etc ad lib should supply plenty of this stuff.
For people who suffer with herpes it usually means that
Arginine supplementation is not a good idea. But if you can
balance Arginine with L-Lysine it is a good idea. So back
to Undenatured Whey Protein which arrested my herpes pretty
much and you will see that the natural balance here is
preserved by the fact that a serving contains 1.57 grams of
L-lysine to 0.41 grams of Arginine.
Now if I understand the poster she has a problem with
financing the Arginine she finds beneficial and towards that
end I wonder how much she is taking?
And what does the rest of her diet look like?
I am sure that going to Google.com and searching on the
amino acid in the common foods will yeild some interesting
information on the cheapest way to get more Arginine in your
diet. But remember the balance of the amino acids and getting
sufficient protein is very important.
later
Bobbie Sellers
-- bobbie sellers - an exhausted, retired nurse in San Francisco
bliss at california dot com
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| X-No-Archive: yes
----- Original Message -----
From: Wendi Carrillo
Newsgroups: alt.med.cfs
To: CFS-L@LISTSERV.ICORS.ORG
Sent: Monday, July 10, 2006 9:27 AM
Subject: Re: just connecting
Shea,
My anxiety was mainly due to my thyroid disorder that makes me hypothyroid. When I am not hypo I much more relaxed and feeling no anxiety.
Have you had a full thyroid panel done? Problem for me was that my docs always said my TSH was normal, which was normal years ago, but now the new range is much lower, PLUS I had antibodies which they never tested me for even though I have a pretty mo
derate size goiter. All I can say is thank god for my NP that thought to check my thyroid. I no longer need Zanax and of course a diet change was needed, but I'm on a better path. Of course I still have anxiety, who doesn't, but I can handle it now and do
n't need the drugs to suppress it.
Hi Wendi
What does a full thyroid panel include?
| |
| Wendi Carrillo 2006-08-25, 4:23 pm |
| Hi Tony,
For me it included my free t3/t4, antibodies to Hashimoto's and TSH.
The regular tests are just TSH, but if you have antibodies than the TSH doesn't really mean a whole lot. With Hashimoto's your thyroid swings between hypo and hyper-thyroid as it's being attacked and destroyed.
Hope that helps!
Tony <tony23@EFN.ORG> wrote:
X-No-Archive: yes
----- Original Message -----
From: Wendi Carrillo
Newsgroups: alt.med.cfs
To: CFS-L@LISTSERV.ICORS.ORG
Sent: Monday, July 10, 2006 9:27 AM
Subject: Re: just connecting
Shea,
My anxiety was mainly due to my thyroid disorder that makes me hypothyroid. When I am not hypo I much more relaxed and feeling no anxiety.
Have you had a full thyroid panel done? Problem for me was that my docs always said my TSH was normal, which was normal years ago, but now the new range is much lower, PLUS I had antibodies which they never tested me for even though I have a pretty modera
te size goiter. All I can say is thank god for my NP that thought to check my thyroid. I no longer need Zanax and of course a diet change was needed, but I'm on a better path. Of course I still have anxiety, who doesn't, but I can handle it now and don't
need the drugs to suppress it.
Hi Wendi
What does a full thyroid panel include?
---------------------------------
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|
| X-No-Archive: yes
Hi Tony,
For me it included my free t3/t4, antibodies to Hashimoto's and TSH.
The regular tests are just TSH, but if you have antibodies than the TSH doesn't really mean a whole lot. With Hashimoto's your thyroid swings between hypo and hyper-thyroid as it's being attacked and destroyed.
Hope that helps!
Hi Wendi,
It helps. My doctor takes free t3/tr & TSH. No need for an antibody test since I never get hyper-thyroid.
| |
| Wendi Carrillo 2006-08-25, 9:21 pm |
| Well, I wasn't either. Hyperthyroid that is.. I was borderline hypothyroid and had a goiter, thus the test. I have low levels of Hashimoto's in the test. There's some 15% of us with Hashimoto's. It's an autoimmune disease caused by the viral effects of wh
atever you have, mine being EBV..
Also, beware, you don't have to have a goiter to have Hashimoto's. I bet you I've had Hashimoto's brewing for years, and wish I'd caught it three years ago when I felt things were going downhill.
Good luck to you!
Tony <tony23@EFN.ORG> wrote:
X-No-Archive: yes
Hi Tony,
For me it included my free t3/t4, antibodies to Hashimoto's and TSH.
The regular tests are just TSH, but if you have antibodies than the TSH doesn't really mean a whole lot. With Hashimoto's your thyroid swings between hypo and hyper-thyroid as it's being attacked and destroyed.
Hope that helps!
Hi Wendi,
It helps. My doctor takes free t3/tr & TSH. No need for an antibody test since I never get hyper-thyroid.
---------------------------------
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