| Wendi Carrillo 2006-07-08, 4:21 pm |
| Morning, Pamela,
I'm imagining that I'm writing this from a window overlooking your lake house! How nice...
Pamela, you are definitely NOT alone in the friend issue arena. I'm counting my close friends and they are two. My husband and his best friend and yet the friend still has no idea how sick I really am. I put on my "all's good" face when he's around. The
only excuse I have now that people can half way understand is when I use my Hashimoto's thyroid disease to explain to them why I quit my exercise class, or why I can't go out for drinks, or go out at all anymore. It's the ONLY thing I have diagnosable th
at people understand.
I'm a shell of my previous CFS self, just in the last year. My Hashimoto's has taken it all out of me. Being hypothyroid is like CFS mulitiplied by 10. Many people believe I had Hashimoto's all along, and if I get it under control everything else will g
o away. I did NOT wake up with Hashimoto's. I woke up with a flu that changed my entire life as I knew it 15 yrs ago. Hashimoto's is just a result. I look at all my supplements and naturopath bills and wonder where the heck the guy is out there who can fi
x me with gene therapy instead of ALL this other stuff. We've all been struggling this long with no cure. Heck, people with HIV almost live a better existence than some of us. Not that I'd trade this disease for HIV, but dear god, can we not get some legi
timate help?
Pamela, I don't know how to tell you to deal with the lack of understanding and care from your friends. My own mother, who is one of the most understanding people I know, still she does not get it. She thinks it was the emotional trauma of being an only
child with a young mom who wasn't around much. Again, another person who thinks it's all in my head because, "you don't look sick". Thank god for the goiter or they'd have put me in the loony-bin by now! LOL!
For help through the hard times I look to my spiritual side. Yeah, and I get mad too once in a while. You know, the whole why me bit. And I too, put too much pressure on my husband. Thank God for him. But honestly, he's the only reason I haven't done so
mething to hurt myself. It would devastate him and I couldn't imagine leaving him with those emotions. But it gets that hard sometimes.
Hang in there. Wish we were near each other. At least we could lay out together, watch movies and dish about the world together from our safe zones without any outside judgement. What fun that would be!
Take care.. We're always here if you need to chat 
-Wendi
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