| Roger Russell 2006-04-24, 1:02 am |
| Sara,
You know, the problem with these kinds of conditions is they wax
and wane. We don't know what brings them on, or why?
What causes downturns in Lupus is stress, from 3 lupus patients
I've spoken too. So, if you're happy and stress free - but over do
it, or get exposed to chemicals the CFS/FM could kick in. With that
many health conditions, it's going to be hard for you to figure out
why you feel so badly.
There are lot's of support groups for lupus, I saw a glossy
magazine a lupus organization put out, and was amazed at the money
they had for research and other things. It looked like a really well
oiled machine. (operating smoothly) I bet there are lot's of places
you can get some information from.
Good luck, and I hope you feel well enough to enjoy the
springs season.
Roger
On Apr 23, 2006, at 8:58 PM, Sara wrote:
> That is good that he was able to figure out some more of what was
> going on
> with you! Thyroid problems seem to be so common in this syndrome,
> and it
> sounds like some docs don't get into that area of health at all to
> see what
> help might be needed there.
>
> My blood work lately seems to be normal all the time -- even when I
> was
> sicker this past July to December. Not that I want bad lab results,
> but it
> doesn't give us much to work with LOL.
>
> I would agree about the previous test, but evidently I'm the only
> one among
> my internist, rheumatologist, etc. I will be seeing a new
> physiatrist/pain
> management doc in May, and I'm hoping to convince her to run some
> more tests
> for that and Sjogrens.
>
> I understand about lupus and remission, but I can't imagine that I
> would
> have been in remission last year when I was so sick.
>
> I dunno -- who knows LOL. Just wanted to see if anybody had had some
> experiences with this lupus thing 
>
> Gotta keep an eye out to make sure those docs of mine are doing
> good
>
> Sara L
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