Home > Archive > Chronic Fatique Syndrom > September 2005 > MISUNDERSTANDING - OR UNDERSTANDING,





You are viewing an archived Text-only version of the thread. To view this thread in it's original format and/or if you want to reply to this thread please [click here]

Author MISUNDERSTANDING - OR UNDERSTANDING,
Rita Joy

2005-09-23, 5:42 pm

Dear Vicki, and anyone else I have not replied to,

As you might have read, I sent two emails which got lost because they =
were too long, as they were added to replies.

Thank you again, for the compliment. I just bashed it out, feeling that =
Cindy could do with a little morale support. (Sorry, change that to "a =
lot of morale support" ). I gotta learn how to "paste" on this =
thing !! I really ought to buy an instruction manual, but I have to =
travel 12 miles, and then drag myself round that town looking for a =
Computer shop or bookseller that has it in stock, right there and then. =
I suppose I should "let my fingers do the walking" and get on Yellow =
Pages : now WHY did I not think of that before !!!??? Empty space =
inside my head, but I get there in the end. =20

I have been a bit self absorbed researching breast cancer, also. =
Boy!!! am I glad I did !! Also, I have discovered that I am not as =
stupid as I thought I was. That, in itself, is a morale booster, =
having only half a brain and being so stressed and tired, because =
insomnia and pain from my last surgery in November 2003. As we do not =
tolerate anasthetics very well, and they can cause a relapse, and also =
the lingering pain that surgery can cause, I have researched everything =
to do with Breast cancer. : Biopsy cores and colours, Enhanced MRI, =
etc., etc., etc., & all new and different ways of treating women with =
breast cancer. =20

As I am only 55 miles from London (my home town), I also changed my =
docs and hospital. Read into that what you will. The Royal Marsden and =
The Royal Brompton and Harefield Hospitals are the finest cancer and =
heart centres in the U.K. They deal with people with complicated =
medical histories, and after the last debacle, I was not going to take =
any chances. It has paid off, as they are taking the most great care of =
me, especially with my heart. The op is yet to come, sometime after the =
23rd., after they have tested my heart, for a third time, with a 48 =
hr., ambulatory heart monitor. It will be minimally invasive surgery, =
NOT like the last one !! But I am confident, and calm, knowing I am in =
the best possible hands. If ever breast cancer rears its ugly head with =
you, having this illness, and yours, ya'all know where to come. Do =
not have unneccessary surgery, when you can have a lumpectomy, or better =
still an excisional biopsy. You will have far less ongoing pain, pain =
for me that is still with me after 23 months. (The doc said it would =
only last 3 months). Ha Ha!! That is also, I assume, related to our =
illness: nerve and tissue damage, and suppressed immune system, AND we =
NEED our lymph nodes!!!!! Just keep it in mind. It has taken me 11 =
months to learn what I have, so I might be able to save you time ??=20

Cindy, I hope you read this. My email to your mom was really sent with =
the very best intentions. I was ignorant of ME/CFS and had nobody in my =
corner to fight for me. BUT NOW, with this computer I can educate =
myself, and not believe the flim-flam some docs dish out. You do not =
mess about with ME/CFS, the most debilitating illness one can contract, =
or Cancer.=20
Best Regards Rita U.K.. =20
Copyright 2003 - 2008 pahealthsystems.com