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Home > Archive > Chronic Fatique Syndrom > December 2005 > CFS Research Foundation (CFSRF) Website back online
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CFS Research Foundation (CFSRF) Website back online
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| Wendi Carrillo 2005-11-19, 12:51 pm |
| Tom - I'd love to give to this Foundation to further research, but how do you that in US dollars? The forms are only in pounds. The online "givenow.org" form only accepts pounds as well. Do you have any ideas?
Regards,
Wendi
tomkindlon@gmail.com wrote:
(Feel free to repost)
The CFS Research Foundation Website http://www.cfsrf.com
[AOL: Here]
is now back online after a gap of many weeks.
"The Foundation Newsletter" (published this time last year):
http://www.cfsrf.com/pdf/Newsletter-10.pdf
and
"The Appeal for Funding"
http://www.cfsrf.com/pdf/Appeal.pdf
give some details of the gene expression research, being led by Dr.
Jonathan Kerr, that they are helping to support (and will involve,
amongst others, some of Dr. Enlander's patients).
The Publications page:
http://www.cfsrf.com/Publications.htm
contains a lot of the full papers they have supported over the years
(although the full papers for their latest two papers have been taken
down).
One can download a form to donate at:
http://www.cfsrf.com/pdf/donate.pdf
If one wants to donate online, one can do so at
the page for the CFS Research Foundation on givenow.org:
http://tinyurl.com/cld93
i.e.
https://secure.givenow.org/charitys...oundation&GUID=
Regards,
Tom K.
(who is just a patient i.e. doesn't profit more than anybody else if
people donate to them)
---------------------------------
Yahoo! FareChase - Search multiple travel sites in one click.
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| Corina 2005-11-19, 5:52 pm |
| Hi Wendi,
I think if you just type in the amount in pounds that you wish to pay
with your credit card, it will work out fine. Just remember that one
pound is about two US dollars, so put in a number that's about half
as much as you want to donate in dollars!
Corina
>Tom - I'd love to give to this Foundation to further research, but
>how do you that in US dollars? The forms are only in pounds. The
>online "givenow.org" form only accepts pounds as well. Do you have
>any ideas?
>
> Regards,
>
> Wendi
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| Meir Weiss 2005-11-20, 12:53 am |
| Somebody with far too much free time in his/her life has hacked the
site...........
-----Original Message-----
From: Chronic Fatigue Syndrome discussion CFIDS/ME
[mailto:CFS-L@MAELSTROM.STJOHNS.EDU] On Behalf Of Corina
Sent: Saturday, November 19, 2005 17:09
To: CFS-L@MAELSTROM.STJOHNS.EDU
Subject: Re: CFS Research Foundation (CFSRF) Website back online
Hi Wendi,
I think if you just type in the amount in pounds that you wish to pay with your
credit card, it will work out fine. Just remember that one pound is about two US
dollars, so put in a number that's about half as much as you want to donate in
dollars!
Corina
>Tom - I'd love to give to this Foundation to further research, but how
>do you that in US dollars? The forms are only in pounds. The online
>"givenow.org" form only accepts pounds as well. Do you have any ideas?
>
> Regards,
>
> Wendi
| |
| tomkindlon@gmail.com 2005-11-25, 10:52 am |
| Wendi Carrillo wrote:
> Tom - I'd love to give to this Foundation to further research, but how do you that in US dollars? The forms are only in pounds. The online "givenow.org" form only accepts pounds as well. Do you have any ideas?
>
> Regards,
>
> Wendi
>
> tomkindlon@gmail.com wrote:
> (Feel free to repost)
>
> The CFS Research Foundation Website http://www.cfsrf.com
> [AOL: Here]
>
> is now back online after a gap of many weeks.
>
> "The Foundation Newsletter" (published this time last year):
> http://www.cfsrf.com/pdf/Newsletter-10.pdf
> and
>
> "The Appeal for Funding"
> http://www.cfsrf.com/pdf/Appeal.pdf
>
> give some details of the gene expression research, being led by Dr.
> Jonathan Kerr, that they are helping to support (and will involve,
> amongst others, some of Dr. Enlander's patients).
>
> The Publications page:
> http://www.cfsrf.com/Publications.htm
> contains a lot of the full papers they have supported over the years
> (although the full papers for their latest two papers have been taken
> down).
>
> One can download a form to donate at:
> http://www.cfsrf.com/pdf/donate.pdf
>
> If one wants to donate online, one can do so at
> the page for the CFS Research Foundation on givenow.org:
> http://tinyurl.com/cld93
>
> i.e.
> https://secure.givenow.org/charitys...oundation&GUID=
>
> Regards,
>
> Tom K.
> (who is just a patient i.e. doesn't profit more than anybody else if
> people donate to them)
Hi Wendi,
It's great that you're so enthusiastic.
I am too which is why I posted the message around the net, have donated
to them and am involved in group which has donated to them.
As Corina says, just factor in it's in a different currency. I'm not
expert but it shouldn't cost you much if anything just because it's in
a different currency - I'm often getting things using a credit card on
the net that are in a different currency (and have donated to the site
which is a different currency). This is different to say getting a
bank draft in another currency which is expensive.
I've set the following on my favourites to help me convert from one
currency to another:
http://www.xe.com/ucc/
(Universal Currency Converter)
It's handy for going in different directions e.g. you could decide how
many dollars you'd like to give and see what that converts to in
pounds.
Bye,
TK
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| tomkindlon@gmail.com 2005-11-25, 10:52 am |
| Meir Weiss wrote:
> Somebody with far too much free time in his/her life has hacked the
> site...........
Seems to be working now ok.
| |
| Tom K. 2005-12-13, 5:53 pm |
| tomkindlon@gmail.com wrote:
> (Feel free to repost)
>
> The CFS Research Foundation Website http://www.cfsrf.com
> [AOL: <a href="http://www.cfsrf.com">Here</a>]
>
> is now back online after a gap of many weeks.
>
> "The Foundation Newsletter" (published this time last year):
> http://www.cfsrf.com/pdf/Newsletter-10.pdf
> and
>
> "The Appeal for Funding"
> http://www.cfsrf.com/pdf/Appeal.pdf
>
> give some details of the gene expression research, being led by Dr.
> Jonathan Kerr, that they are helping to support (and will involve,
> amongst others, some of Dr. Enlander's patients).
>
> The Publications page:
> http://www.cfsrf.com/Publications.htm
> contains a lot of the full papers they have supported over the years
> (although the full papers for their latest two papers have been taken
> down).
>
> One can download a form to donate at:
> http://www.cfsrf.com/pdf/donate.pdf
>
> If one wants to donate online, one can do so at
> the page for the CFS Research Foundation on givenow.org:
> http://tinyurl.com/cld93
>
> i.e.
> https://secure.givenow.org/charitys...oundation&GUID=
>
> Regards,
>
> Tom K.
> (who is just a patient i.e. doesn't profit more than anybody else if
> people donate to them)
In a letter to their supporters, the CFSRF http://www.cfsrf.com have
recently said, about the gene expression research which is their focus
at the moment: "Dr. Kerr is now building up his team to take this
project into its second stage when he hopes to devise a laboratory
diagnostic test and he is also making plans for clinical trials."
I have heard that the clinical trials may start as early as March. I
don't know what they are testing at this stage.
Fingers crossed they get the money to keep going.
Tom
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