| Jan van Roijen 2005-01-28, 7:41 am |
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27 January 2005
Editorship : j.van.roijen@chello.nl
Outgoing mail scanned by Norton AV
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Reference:
"CFS report Health Council of The Netherlands published"
at Co-Cure:
http://listserv.nodak.edu/cgi-bin/w...re&F=&S=&P=1289
~jvr
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From: John Sayer <john23@sayer.abel.co.uk>
[vbcol=seagreen]
> Today, the Health Council of The Netherlands
> presented its CFS report to the Dutch
> government....
Hi all,
I don't have the strength just now to comment in detail to this
report. I will try to do a fuller critique when I'm feeling better. It
really is one of the most depressing documents I've ever read,
especially in this day and age.
All I can say at the moment is that I think it's one of the worst
pieces of misinformed, misleading and patronising propaganda
I have read in a very long time.
Just a couple of examples:
"....They hear stories (via the internet, a patients'
organisation or those around them) about people who
have had CFS for many years. They can easily get into a
situation devoid of future prospects, which persists for
many years...."
So for those who "hear stories" about people recovering - are
we to then suppose that they "spontaneously recover" as a
result?
And they seem to be concerned mainly about FATIGUE:
"...the research and treatment of chronic fatigue should be
confined to those patients who satisfy the CDC-94
criteria...."
"....The doctor-patient relationship influences the course
of fatigue complaints....." (Duh?)
"....To stand still is to move back' is the starting point in
the management of fatigue complaints...."
"....Fatigue frequently has an 'everyday' cause such as
over- work or stress...."
"....Proper patient care requires guidelines for the
diagnosis and support of patients with fatigue
complaints...."
But the one that really takes the biscuit for me is the wonderfully
insightful (not!) comment that:
"....The quality of life of CFS patients is lower than that of
healthy people...."!!!
Gee. Really?
Thank God I don't live in Holland. My heart goes out to Dutch
sufferers.
Cheers,
John
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