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Home > Archive > Chronic Fatique Syndrom > August 2004 > Re: MED,OTHER: cfs - meds
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Re: MED,OTHER: cfs - meds
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| KathY:
I was tested here in Ontarion between 1986 and 1994.
Our Govt medical system does not do complet EBV testing nor Complet
CMV testing NOW - all they will report is IF you DO or DO NOT have
antigens to these viruses.
If you want complete testing: you will have to submit a written letter
to the nightingale foundation in ottawa. They will mail you a question
air to be filled out and returned. HYDE is VERY SELECTIVE in whom he
accepts due to the huge amount of time he spends working with a case
I beleive he only takes cases where there is a potential for litigation
against disability claims, as this is the only way he can recover his
costs due to the amount of time. Generallym, you will see him at least
two visits of 3 hours each - and possible more. He can only charge for
three office visits and that NO WAY covers his costs and thus he
operates
in the redink department.
There SHOULD be good physicans WHERE you live! See the good doc list
from Lydia at the National ME/FM Action Network - her number is in the
phone book - NEPEAN - area code 613.
I have a comment within your text!
Kathy Froese wrote:
>
> But Ken, you did get tested and showed positive to EBV?
>
> Many people are trying to find out how to get GOOD testing
> and haven't found the excellent doctor who so accurately
> diagnosed you. I've received backchannel e-mails in
> response to my previous post, asking for any information I
> might find.
>
> It's impossible for most of us in Canada to get the testing
> we need. You were fortunate in finding a doctor and a
> treatment that helped your illness, but many of us are left
> with the diagnosis of "CFS" which means little when it
> comes to getting the right treatment.
>
> I've been diagnosed with CFS by at least 3 doctors but have
> never been able to get the testing I need. I would have to
> go to the U.S. and have considered doing so but haven't been
> well enough do what's required.
>
> I have been on the Efamol program, but I developed bleeding
> underneath my skin (apparently from Efamol, yes, the true
> Efamol - diagnosed by a ND/MD) and my gut couldn't tolerate
> the B vitamins.
If you don't EAT within an HOUR of ingesting the vitamin mineral
formulation with the efamol, you WILL experience stomach upset.
If you are taking NSAIDS - you will devlepe bleeding ulcers between
the 22 and 28th consecutive month of that medication!
You are NOT bleeding from the Efamol - it is caused by something ELSE!
Are you using ANY FORM of blood thinner?
> It's not a cure-all for all of us. How I wish that it
> were!!!
>
> Kathy F.
>
--
Regards:
Ken (MESS) http://cfids-cab.org/mess
mailto:m.e.s.s-@sympatico.ca
Yahoo Voice Conference: <ken_mess>
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