| Linda R 2005-10-29, 10:51 am |
| George,
I read a little on another thread and see a bit more where you are
coming from. I respect your opinion and I do believe the drugs can help
for a limited period of time. I'm not so sure about long term.
After being in a clinical trial for almost 4 years, I opted to go off
the drugs 5 months ago. I tolerated the drugs amazingly well, but when
I got a rash in late May, I started getting nervous. My numbers were
great, but I am not sure that surrogate markers are true indicators of
health. the ID doc had no problem with my decision at the time.
I have been torn between continuing to follow the numbers and just
trusting how I feel. For now, I think I'll keep checking them. Though I
have very little faith in the "viral load". Should I become extremely
ill, I would do all I could to come out of it. I would treat any OI
first and see what happened. I believe I had a bad case of flu along
with great physical and emotional stress and that is what screwed up my
immune system. (I had PCP.)
So most of what the dissident people say really rings true with me. I
am not committed to following them no matter what happens. I honestly
am interested in the truth. I'm unconvinced that HIV can do all that's
attributed to it. I am not in denial--I'm just not convinced, and will
continue to investigate all possibilities. I am angry that I never
found out there might be alternatives until a few months ago. I think
people should be trusted with all the options and allowed to make up
their own minds. I think there should be studies investigating
alternative theories, though I have no idea who'll fund them! sure
won't be the drug companies!
So this is where I'm coming from, and the stake I have in this. It's
quite literally my life that is on the line. We'll see what happens.
Maybe clean living, good food and good supplements will do it, maybe
not.
Linda
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